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Tell us what you are using to treat your MS-- and how you are doing.

MS and Spinal fusions?

Hi everyone, this is my very first post. I'm not new to auto immune diseases. I've had rheumatoid arthritis for 36 years. I've had most of my joints replaced and in the last five years I've had C1-T2 fused completely with 14 inch rods on each side of my spine from the base of my skull into my ribs. This past March I had lower lumbar fusion with 6 inch rods on the sides of ...
Read more : MS and Spinal fusions? | Views : 1125 | Replies : 10

Tecfidera ....and Gas


I have been taking Tecfidera for almost 3 weeks now. I do not experience any symptoms (thank God) besides horrible flatulence and gas. There is no constipation or abdominal pain, just the gas. I was wondering if anyone has any suggestions on how to reduce the gas? I do not eat dairy, meat, or processed foods btw. Any advice would be appreciated. Thanks!
Read more : Tecfidera ....and Gas | Views : 893 | Replies : 4

False positives??

Had my first lot of bloods done since starting on Gilenya 1 and 1/2 mths ago and the results came back positive for a ty pe of TB?
Could it be a so called false positive?
Pls let me know more about this if you have experience with this.
Hang in there MS:ers, Love you all :-D
Read more : False positives?? | Views : 704 | Replies : 4

Wheldon Rollercoaster


I am a 39 year old male and have been on the Wheldon protocol since February 15, 2015. I am now at the stage where the antibiotics are given intermittently (14 days every month). On Dr. Wheldon's website it says to do this for several months. I wanted more clarity on what several months means and how long to continue on with this protocol before I extent the periods between taking the antibiotics and ...
Read more : Wheldon Rollercoaster | Views : 953 | Replies : 4


Dear friends,
In this MS world´s day I would like to share with you my experiences with different CAM therapies. Since 2010 when I realized that something started to move inside of me I started my protocol with CAM treatments that I have integrated in a still non ended list. My intention is more to explain the therapies or mix of therapies that I have put into practice all over these years, is to launch ...
Read more : TRANQUILNESS strategy | Views : 823 | Replies : 0

Starting Natalizumab as a first line treatment ?

Hi All,

I had been recently diagnosed as a case of Multiple sclerosis with active inflammation and had my first attack a month ago. Intravenous steroids were given and am currently on Oral steroids for tapering dosage. I had paraesthesias and visual symptoms in right eye, but after steroid therapy, currently i dont have any symptoms except for Urgency and frequency of micturition. My Neurologist after reviewing my clinical profile and MRI progression of lesions ...
Read more : Starting Natalizumab as a first line treatment ? | Views : 805 | Replies : 0

Just bought children's fish oil by mistake!

Ugh -- I bought Carlson's Norwegian fish oil and thought I was buying the smallest size so that I could try it. Turns out its children's! 800 mg. Do I just double the dose, since their adult fish oil is 1600 mg? Will I get enough nutrient from fish oil alone? Bought it because it was the only brand refrigerated at Whole Foods. I'd prefer capsules so welcome all recommendations for brands/dosing and confirmation that ...
Read more : Just bought children's fish oil by mistake! | Views : 1116 | Replies : 3

Just starting to put together vitamins and supplements help!

I'm just beginning to organize my supplements after a recent dx of MS. I want the best quality *fresh* (cold pressed Omega-3, fish and/or flax), etc.

- Which supplements would you buy first, where would you buy them?
- How would you store them?
- And what would you add on as time went by?

I'm trying to start with a few key supplements, which I assume are D, B, Omega 3.

Many thanks, I ...
Read more : Just starting to put together vitamins and supplements help! | Views : 2115 | Replies : 11

Suggestions for dosing/regimen


I'm brand new, awaiting a MS dx, but likely won't happen until early next month.

Meanwhile, I'm taking control of what I can do myself. For now that's primarily with diet and supplementation.

My primary question right now is: What next steps should I take to boost my vitamin D level?

A couple of weeks ago, it came back as 9.9 ng/ml. That's obviously completely unacceptable. I took a 400,000 IU megadose almost two ...
Read more : Suggestions for dosing/regimen | Views : 1395 | Replies : 4


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