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Tell us what you are using to treat your MS-- and how you are doing.

Abx sojourn

Ok, here goes, it's time to start a treatment log.

I already keep one on CPn Help.org which is mostly for myself. This one I will keep for others.

First, a little about us. J is my husband diagnosed in May 2004. Prior to his exacerbation he had eye floaters (while jogging), numbness in his pinky side of his right hand, interminent color change (for years) and a swallowing issue. All of these were dismissed by ...
Read more : Abx sojourn | Views : 6060 | Replies : 21


Looking for MS/physical-therapy Resort

Does anyone know of a resort environment anywhere that specializes in immersive physical therapy, nutrition, etc. for individuals with disabilities and/or MS specifically? I've been searching online but haven't found anything.

Thanks so much for any tips!!!

-- Paul
Read more : Looking for MS/physical-therapy Resort | Views : 2667 | Replies : 3


Jaded - progress on abx

I am so pleased to hear the progress many of you have made on the abx and other regimes that I thought I'd let you all know how I am doing.

I have been on the abx since August 2005, and took my first pulse of flagyl just after Christmas. My second pulse finished just over a week ago as I delayed it.

In between the two pulses I started to get an intermittent numbness ...
Read more : Jaded - progress on abx | Views : 3197 | Replies : 9


I removed my post

I removed my post
Read more : I removed my post | Views : 2507 | Replies : 0


EDSS IMPROVEMENT from any REGIMEN?? -- FROM, TOO

I was just curious if anyone would kindly post the following information:

MS Stage (RR, SP, PP, B) =

Regimen =

Length of Time on Regimen =

EDSS before Regimen =

EDSS after Regimen =


I want to see if anything is really working. There is so much content on this site it would take a very long time to read all of it.
Read more : EDSS IMPROVEMENT from any REGIMEN?? -- FROM, TOO | Views : 12979 | Replies : 44


Hello All - Where Do I Start?

I am a 45 year old guy diagnosed with MS in 1997. I started Avonex in 1997 and have been taking it nonstop ever since. I am fortunate that I have very limited disability (hands, right leg) due to flareups of the MS in 1996-2000. I have had clear and clearer MRIs since the Novantrone "put the fire out" on MS for now. Still looking over my shoulder as I run this race though. Other ...
Read more : Hello All - Where Do I Start? | Views : 2676 | Replies : 3


Mamahawk's Regimen

10/05/05
Diagnosed with MS after hospitalized for sudden onset bilateral 'gaps' in vision, spinal tap positive for oligoclonal bands, MRI showed 20 lesions on brain, 3 enhancing, one on spinal cord)
Methylmalonic Acid level 575 (normal 80-220)
Negative for Hughes, Lupus, Lyme, Sjogrens

10/10/200505
Started Best Bet Diet (Ashton Embry)
Started Supplements: Multi vit (GNC), Multi mineral (GNC w/ many minerals inc. Ca 1000mg/Mg500mg), Ultra Pure Fish Oil (EPA 2200mg/DHA 750mg), EPO 1-300GLA, CoEnzyme Q10 ...
Read more : Mamahawk's Regimen | Views : 17977 | Replies : 81


Help for PattiD

My husband has been on the protocol about 6 weeks, and his progression seems to have increased. His walking seems so tenuous, and his balance has deteriated more. He is falling more.

He quite the Copaxone that he felt was not doing much when he started the protocol. He finished his first flagyl pulse last week.

We are trying to stay positive, but we are fearing this progression will continue. Did anyone have this difficulty ...
Read more : Help for PattiD | Views : 1725 | Replies : 0


N acetyl cysteine (NAC)

Hi all,

I've just come back from a trip around France on my own. Naturally there was a train strike so I had major problems getting from A to B without the added burden of not being able to walk properly. Whilst on the trip and perhaps somewhat foolishly I added an extra 600mg of N acetyl cysteine (NAC) to my existing regime of 1,200mg of NAC per day. During the week an ongoing snuffle ...
Read more : N acetyl cysteine (NAC) | Views : 2362 | Replies : 1


LDN so far-will start antibiotics in Feb. 2006

Hello everybody,
I am Orestes, a 59 yr old male from Athens, Greece, who was diagnosed with MS, chronic progressive, about 10 years ago. I am an architectural painter by profession, and since I retired, draw for pleasure highly detailed, quirky caricatures of famous people.
I've been in a wheelchair with left leg/left arm weakness for about 3 years. I can walk very short distances holding on to a wall. There are no additional health ...
Read more : LDN so far-will start antibiotics in Feb. 2006 | Views : 3960 | Replies : 14


 

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