This Is MS Multiple Sclerosis Community: Knowledge & Support

Sorry, I don't know what to do! I'm new here and I will read everything. My Neurologist doesn't even want to talk about CCSVI, and is pushing Gilenya.
I had my CCSVI repaired in 2011. I feel great and I get a new MRI next week.

Hi All,

Very excited to have found this forum as I am very interested in intelligent discussion around the possible causes and treatments of this disease. Sorry to write a book for my first post...

I have been investigating the theory that MS symptoms, at least in part, are due to an imbalance in immune modulating hormones and have put it to practice in my own life. There is much anecdotal evidence that low Saturated ...

I sleep away too much. I am in the midst of another relapse. Steroids...blah blah. I know I need sleep I get it but 12 hrs a day split up?? What do people take to stay awake...I've heard adderal and provigl?! I am soo depressed. Sleeping my life away....or up when the family is asleep. Grrrrrrrrrrrrrrrrrrrrrrr.
Any suggestions PLEASE!
Thanks
M

Today, I was working on diet for my daughter and I started calculating her iron intake and I am sure her iron intake prior to the diagnosis was high even though she wasn’t really eating too much meat. But when I subtracted all carbs then her iron was very low. She has a real anemia. I have a friend who always joked that the Asian people don’t have wrinkles because they don’t rust on the ...

Testimony extolling the virtues of nutritional therapy to heal MS flood the Internet. Well known
protocols include the 60 year old Dr. Roy Swank low saturated fat diet, the Roger McDougall Diet, the
French Dr. Kousmine Diet, Dr. Terry Wahl’s diet, jimmylegs on Thisisms.com diet,
even my own MS Cure Enigmas diet. So you turn yourself into a Carrot head and still have raging MS attacks. You find irritating the “Aren’t I great, I just ...

I do not have MS. I have an acquired metabolic syndrome that is similar in symptom sets and is ultimately just a different manifestation of the same root cause.

I have just received the following feedback concerning a woman who has had MS for 18 years and thought you all might be interested:

I stay busy but i'm OK... Sorry i haven't kept in touch. I've been through some things that's kept me distracted from ...

haven't been on here since I was diagnosed. i've migrated across the country to a place with better sun.

finally found a doctor to test what I want (kinda) and am hoping you'll give me your opinions (any of u, but jimmylegs mostly :ymblushing: )

hope you don't mind me putting it all down...

TEST NAME:
HEMATOCRIT 51.1 H 38.5-50.0 %
MCV 84.5 80.0-100.0 fl
MCH 26.7 ...

After reading several of others' posts, I feel disheartened. I am on a ton of medication for multiple symptoms whereas others are taking next to nothing. However, that being said, what works for one does not work for others, or, the pain medication and others have stopped working for some. I was diagnosed in late 2009 and my regimen is as follows:

Dilauded 8 mg @ 4 times/day - obviously for pain
Primidone 50 mg ...

Thinking of adding Padma basic to my regimen. Any thoughts on whether it is likely to interact with:

Circumin
Fish oil
Evening primrose oil
Walnuts
Vit D3, E, B12
R-Alpha lipoic acid
Inosine
Copaxone

Thanks,

Jim

My hubby is a regular medicinal user for spasms and pain. we are taking a trip this winter to the Florida keys via miami where it is not legalized and I am guessing there are no dispensaries? In knowing we cannot take it over the border Canada / USA, any suggestions on what we can do? Leery about not accessing it legitimately! Private message... Thx