This Is MS Multiple Sclerosis Community: Knowledge & Support

I was just curious if anyone would kindly post the following information:

MS Stage (RR, SP, PP, B) =

Regimen =

Length of Time on Regimen =

EDSS before Regimen =

EDSS after Regimen =


I want to see if anything is really working. There is so much content on this site it would take a very long time to read all of it.

I am a 45 year old guy diagnosed with MS in 1997. I started Avonex in 1997 and have been taking it nonstop ever since. I am fortunate that I have very limited disability (hands, right leg) due to flareups of the MS in 1996-2000. I have had clear and clearer MRIs since the Novantrone "put the fire out" on MS for now. Still looking over my shoulder as I run this race though. Other ...

10/05/05
Diagnosed with MS after hospitalized for sudden onset bilateral 'gaps' in vision, spinal tap positive for oligoclonal bands, MRI showed 20 lesions on brain, 3 enhancing, one on spinal cord)
Methylmalonic Acid level 575 (normal 80-220)
Negative for Hughes, Lupus, Lyme, Sjogrens

10/10/200505
Started Best Bet Diet (Ashton Embry)
Started Supplements: Multi vit (GNC), Multi mineral (GNC w/ many minerals inc. Ca 1000mg/Mg500mg), Ultra Pure Fish Oil (EPA 2200mg/DHA 750mg), EPO 1-300GLA, CoEnzyme Q10 ...

My husband has been on the protocol about 6 weeks, and his progression seems to have increased. His walking seems so tenuous, and his balance has deteriated more. He is falling more.

He quite the Copaxone that he felt was not doing much when he started the protocol. He finished his first flagyl pulse last week.

We are trying to stay positive, but we are fearing this progression will continue. Did anyone have this difficulty ...

Hi all,

I've just come back from a trip around France on my own. Naturally there was a train strike so I had major problems getting from A to B without the added burden of not being able to walk properly. Whilst on the trip and perhaps somewhat foolishly I added an extra 600mg of N acetyl cysteine (NAC) to my existing regime of 1,200mg of NAC per day. During the week an ongoing snuffle ...

Hello everybody,
I am Orestes, a 59 yr old male from Athens, Greece, who was diagnosed with MS, chronic progressive, about 10 years ago. I am an architectural painter by profession, and since I retired, draw for pleasure highly detailed, quirky caricatures of famous people.
I've been in a wheelchair with left leg/left arm weakness for about 3 years. I can walk very short distances holding on to a wall. There are no additional health ...

Hello all,

I was officially diagnosed in Sept. 05 but had my first symptom in April 2000 in the form of mild peripheral double vision. No further relapses until July 2005 when my leg went numb and I had some gait issues. After visiting several neuros and reading many books and articles I settled on the following treatment plan (for now anyway).

1. Swank diet - Although not scientificically proven to help MS, I figure ...

My mino and doxy have arrived apparently just in time for me to be thoroughly confused about the protocols. The "latest" seems to be quite different.
??
Began mino. yest. Two doses so far and have increased spasticity throughout, nagging neck pain which radiates down arms, sudden bouts of hand pain, ringing in ears, sinus/facial pain, sneezing, non-productive cough, feels like BP is lower than usual; also, interestingly, ...

Hi all,

Realised I havnt had a single place just to let others know what I am taking, and how it is working for (on) me. You would quite literally have to look in a number of the forums to get the complete picture. I am hedging my bets.

First a quick overview of the past (rough dates).
1996 diagnosed with a peripheral neuropathy (autoimmune)
Used short Prednisone pulses of 75mg/day tapering down over a ...

Hello Everyone,
I'm newly registered, but have been following this forum for quite a while now. Although things have been not so great, they have gone to very bad lately, due to a recent move and switch in jobs...rather a disaster in the eyes of my husband (who is the one with MS). We only just got back on line after a month (!) without it, at a time we needed it most.
The situation ...