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Tell us what you are using to treat your MS-- and how you are doing.

 [ Total topics 241 Go to page 1 ... 21, 22, 23, 24, 25

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 Post subject: minocycline, rafampicin, flagyl
PostPosted: Tue Oct 26, 2004 4:18 pm 
My first attack started with vision problems. I described it then as "a snowstorm in my field of vision. Then right arm felt weird.unco-ordinated,
parentheses. right leg dragged, bell's palsey, extreme stress, panic attacks,dizzyness,optic neuritis in left eye. The year 1984..I was 28 yr old with 2 small children. Diagnosis possible ms.

1997 another flair..right leg limp/drag, dizzy/vertigo, sleep apnea, vision blurry, muscle/joint pain Diagnosis SPms
gradually gait has worsened to the point needing a ...

Read more : minocycline, rafampicin, flagyl | Views : 8269 | Replies : 25

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 Post subject: Advice on antibiotics while in diagnostic limbo
PostPosted: Mon Oct 18, 2004 2:05 pm 
I just saw an MS specialist, a nationally renowned one at that, and he came to the conclusion that I do not have MS. He said I probably have an unknown inflammatory condition of the CNS and/or peripheral nerves. He also mentioned fibromyalgia as a possibility.

I am greatly relieved but at the same time I am a bit confused since I had positive visually evoked potentials...which I believe are not caused by inflammation, but ...

Read more : Advice on antibiotics while in diagnostic limbo | Views : 2417 | Replies : 6

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 Post subject: Also Trying Antibiotics
PostPosted: Mon Oct 04, 2004 11:19 am 
I too have also decided to give antibiotics a try. I actually made my decision over a month ago, but could not find a cooperative doctor until recently. He wanted to test me for CPN but before we could do the test I came down with a bad urinary tract infection. Which is probably a good thing, since apparently you can test negative for CPN and still have an infection in the cns, and this ...

Read more : Also Trying Antibiotics | Views : 4029 | Replies : 8

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 Post subject: Another antibiotic tryout
PostPosted: Mon Oct 04, 2004 1:32 am 
Hi there all

After doing as much research as I could I decided that the arguments for trying an antibiotic regime were persuasive enough for me to try.

Consequently I met Dr Wheldon (Incidentally he's a very nice chap!). Armed with a prescription I started 200 mg / day doxycycline on Saturday (02/10). I haven't started the roxy yet as that had to be ordered.

I can't report any results yet as it's too early ...

Read more : Another antibiotic tryout | Views : 5262 | Replies : 16

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 Post subject: Copax+
PostPosted: Wed Sep 08, 2004 7:47 am 
Hey everybody,

Copaxone
Multi-vitamin
Vitamin D+calcium
B Complex
(for energy) and B12 (for overall mental health)

I had a bout with ON in 6/03. I was diagnosed in 7/04 after a year of waiting and testing.

I started Copaxone on 8/30/04. Since I am only a week and a half into my C therapy I cannot really say if its working. I do feel the need to sleep in the afternoons and do not have ...

Read more : Copax+ | Views : 3442 | Replies : 7

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 Post subject: Using Cancer Drugs To Treat MS
PostPosted: Mon Aug 30, 2004 3:57 pm 
this is at http://www.wnbc.com/drmaxgomez/index.html
Got it from the LDN yahoo group
I wouldn't risk my life on it.

Using Cancer Drugs To Treat MS

POSTED: 6:14 pm EDT August 30, 2004

It's a simple request, but a few months ago, even walking a straight line would have been impossible for Melissa Kaplan. She has multiple sclerosis and all of the conventional therapies had failed to slow the progression of ...

Read more : Using Cancer Drugs To Treat MS | Views : 1713 | Replies : 1

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 Post subject: MS mum vows: 'I'll go abroad to die without new drug'
PostPosted: Sat Aug 28, 2004 3:24 pm 
Found this article at http://www.talkaboutsupport.com/group/a ... sclerosis/
posted by msbuckaroo

Article originally from:
http://icberkshire.icnetwork.co.uk/0100 ... _page.html

MS mum vows: 'I'll go abroad to die without new drug' Aug 26 2004

Exclusive By Francis Batt

THE much-loved manager of a thriving sports and social club says she will choose to die if she is not allowed access to a new wonder drug.

Brenda Snelling, ...

Read more : MS mum vows: 'I'll go abroad to die without new drug' | Views : 1666 | Replies : 0

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 Post subject: Famous people with MS
PostPosted: Fri Aug 27, 2004 9:00 pm 
There is a list of famous people with MS on
http://www.mult-sclerosis.org
You would think some of them would get together and organize a pool for research outside the normal path. Like for LDN.
Alan Osmond is said to have headed to England and got involved with the Goat Serum (Aimspro) study. http://www.osmondms.com
No update on his condition. Money talks thier.
There are others ...

Read more : Famous people with MS | Views : 2534 | Replies : 5

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 Post subject: The effects of Minocycline in the first two weeks
PostPosted: Fri Aug 27, 2004 12:15 pm 
After giving up on one of the ABCR drugs due to the side effects, I felt the need to at least do something for my newly diagnosed MS. I convinced my GP to give me a prescription for Minocycline.

The first thing I have noticed on being on the antibiotic is that it makes me slightly lightheaded. I haven't experienced any stomach problems yet and I am thinking of adding acidophilus to my diet of ...

Read more : The effects of Minocycline in the first two weeks | Views : 2646 | Replies : 4

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 Post subject: Treating for Chlamydia pneumoniae - a possible cause of MS
PostPosted: Fri Jul 09, 2004 11:39 am 
Treatment:

rifampicin, 300mg twice a day
or: doxycycline, 200mg once a day, but would have to be avoided during pregnancy
roxithromycin, 150mg twice a day (which could be substituted by azithromycin in the States)
B-12, 5000mcg sublingually every day
co-enzyme Q10 in large dosages
4000mg Fish Oil per day
Vitamins A,B,C,D,E, selenium and magnesium in large dosages
acidophilus, several capsules as required.

Also, five day bouts every three weeks or so of:
metronidizole, 400mg three ...

Read more : Treating for Chlamydia pneumoniae - a possible cause of MS | Views : 12494 | Replies : 62

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