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Tell us what you are using to treat your MS-- and how you are doing.

Beyond Avonex and Valtrex

It’s a long time since I made a contribution to the Regimens post as I believe the only objective way to assess a protocol is to give it time and resist the urge to keep adding modifications to the basic idea. That is what I have been trying to do.
I also believe that it took us a long time to get sick and it does take a long time to get well.
After years ...
Read more : Beyond Avonex and Valtrex | Views : 39269 | Replies : 280

Are we taking DMDs after CCSVI repair?

Sorry, I don't know what to do! I'm new here and I will read everything. My Neurologist doesn't even want to talk about CCSVI, and is pushing Gilenya.
I had my CCSVI repaired in 2011. I feel great and I get a new MRI next week.
Read more : Are we taking DMDs after CCSVI repair? | Views : 2585 | Replies : 5

My Regimen (ridiculous?)


My story... lost feeling in my legs xmas 2011, was referred to a Neurologist who said it was probably the flu... no joke... lost feeling in my right hand April 5th 2012 the day my second son was born. Went back to Neuro and he sent me for MRI which showed 9 active lesions on brain and spine. Immediately diagnosed with MS and referred to MS clinic which was a long wait and ...
Read more : My Regimen (ridiculous?) | Views : 9256 | Replies : 24

Too much sleep....

I sleep away too much. I am in the midst of another relapse. Steroids...blah blah. I know I need sleep I get it but 12 hrs a day split up?? What do people take to stay awake...I've heard adderal and provigl?! I am soo depressed. Sleeping my life away....or up when the family is asleep. Grrrrrrrrrrrrrrrrrrrrrrr.
Any suggestions PLEASE!
Read more : Too much sleep.... | Views : 2667 | Replies : 5

You don't need to look anymore

Today, I was working on diet for my daughter and I started calculating her iron intake and I am sure her iron intake prior to the diagnosis was high even though she wasn’t really eating too much meat. But when I subtracted all carbs then her iron was very low. She has a real anemia. I have a friend who always joked that the Asian people don’t have wrinkles because they don’t rust on the ...
Read more : You don't need to look anymore | Views : 13593 | Replies : 60

When Diet Alone Won't Work

Testimony extolling the virtues of nutritional therapy to heal MS flood the Internet. Well known
protocols include the 60 year old Dr. Roy Swank low saturated fat diet, the Roger McDougall Diet, the
French Dr. Kousmine Diet, Dr. Terry Wahl’s diet, jimmylegs on diet,
even my own MS Cure Enigmas diet. So you turn yourself into a Carrot head and still have raging MS attacks. You find irritating the “Aren’t I great, I just ...
Read more : When Diet Alone Won't Work | Views : 4226 | Replies : 6

Low dose benadryl: An unknown treatment for MS

I do not have MS. I have an acquired metabolic syndrome that is similar in symptom sets and is ultimately just a different manifestation of the same root cause.

I have just received the following feedback concerning a woman who has had MS for 18 years and thought you all might be interested:

I stay busy but i'm OK... Sorry i haven't kept in touch. I've been through some things that's kept me distracted from ...
Read more : Low dose benadryl: An unknown treatment for MS | Views : 4862 | Replies : 5

Blood work

haven't been on here since I was diagnosed. i've migrated across the country to a place with better sun.

finally found a doctor to test what I want (kinda) and am hoping you'll give me your opinions (any of u, but jimmylegs mostly :ymblushing: )

hope you don't mind me putting it all down...

HEMATOCRIT 51.1 H 38.5-50.0 %
MCV 84.5 80.0-100.0 fl
MCH 26.7 ...
Read more : Blood work | Views : 3110 | Replies : 11

My Regimen

After reading several of others' posts, I feel disheartened. I am on a ton of medication for multiple symptoms whereas others are taking next to nothing. However, that being said, what works for one does not work for others, or, the pain medication and others have stopped working for some. I was diagnosed in late 2009 and my regimen is as follows:

Dilauded 8 mg @ 4 times/day - obviously for pain
Primidone 50 mg ...
Read more : My Regimen | Views : 1753 | Replies : 2

Padma basic

Thinking of adding Padma basic to my regimen. Any thoughts on whether it is likely to interact with:

Fish oil
Evening primrose oil
Vit D3, E, B12
R-Alpha lipoic acid


Read more : Padma basic | Views : 5017 | Replies : 17


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