All opinionated rant:

Fingolimod was developed by studying the fungus that grows on insects, eventually killing the host and sprouting fruiting bodies. Scientists studied it for the factor which suppressed the immune system of the host and then isolated it and simplified it. I think that the substance they found was a necroptosis inhibitor that actually kept the host alive until it was done with it. This may be the reason why it also causes ...

On my doctor's advice (not a neurologist), I've started the following regimen. I'd asked her for a recommendation on supplements to take to limit neurodegeneration and as a best hedge against neuronal atrophy. I now take these daily in addition to Copaxone and verapamil (migraine prevention).

This regimen includes selegiline (l-deprenyl), which is a prescribed medication. I take selegiline at a low daily dose of 5mg. The claims about reducing excitotoxic damage (I understand this ...

There is a petition that Canadians hoping to bring Vascular Angioplasty to Canada can sign. It is going to the Quebec Legislature but all Canadians who want it brought here would be wise to sign it - What is good for Quebec re MS is good for all of Canada. The URL is https://www.assnat.qc.ca/fr/exprimez-vo ... index.html

It is in French so if you have a language problem, there is ...

Hi all-- asking this for a friend. She recently tried to get scheduled for CCSVI testing and treatment, but was told she couldn't because she's on IVIG? Anyone else have this problem?

I don't know if it's specific to IVIG, since I have a friend on Tysabri, who was able to get scheduled with no problems. I am also on Tysabri and working on getting scheduled, so I don't know if it's because of IVIG ...

Hi

In November I had an acute bout of optic neuritis. Prior to this had suffered on and off paraethesia in my feet. Typically fobbed off by my clown of a GP ion the UK. ON started in UK when I was on repat from Middle East. Spent 4 wasted days being messed about by halfwits at Addenbrookes Hospital in Cambridge making wrong diagnosis.

Flew back to ME and was assessed, MRi'd, and treatment started ...

Ok, here's my story (as truncated as possible). I ...
...was diagnosed 10/01
...have been on all 4 injectibles and one dose of Tysabri - when it was called Antegren (and even on
those drugs, I was relapsing 3-4 times/year)
...started the Best Bet/MS Recovery Diet February 2009
...just finished my last dose of Novantrone in April (and have been relapse free since my first dose
in the summer of 2006)
...started Ampyra in May ...

Hi All,

I was diagnosed with rrms June of last year (2009) I have recently started Copaxone (3 weeks) and all my neuro ever suggested for me was 4000 units of D3 and 1300mg of calcium daily........I have read through some threads on supplements,as well as checked out some links that members have posted and I feel absolutely STUPID. I don't really understand too much about them, and know I should probably have some tests ...

I was diagnosed with MS back in 2001, but was never tested for B12.

Recently, I was prompted to get B12 level checked by several young family members who had recently tested low for B12 (200-300). Their doc (not knowing me) told their mom (my sister) that they should get on supplements since it could lead to future health issues (including possibly MS). When they told him that I had MS, he suggested I get ...

Has anyone ever tried this? I did a steroid treatment back in July and all of my MS symptoms have calmed down except the optic neuritis. My doc prescribed Acthar injections, 1x a day for 5 days and said it would more than likely help my eye sight come back. I have never heard of this medication and was just wondering if anyone has tried it, liked it, hated it, etc.

Thanks for the help! ...

33 year old male dx'd in 2008, had my first relapse (optic neuritis) in 2007

Daily regimen
4 grams of Carlson's Salmon fish oil
1 Multi-vitamin
1000mg Vitamin C
1200mg Alpha Lipoic Acid
2000 iu's of Vitamin D
1200mg of Calcium
3grams of Spirulina
Weight training 3x a week
3 servings of raw vegetables (juiced)
2 servings of fruits

I have my last MRI in June. I've had no new activity or lesions for 2 ...