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Tell us what you are using to treat your MS-- and how you are doing.

Rebif/LMX4 Lidocaine topical anesthetic

I must admit, I'm one of the lucky ones so far. I was diagnosed rather quickly after only 1 clinical episode...of course I've been through multiple MRI's and a spinal tap which were all consistent with someone with MS. Anyhow I delayed starting therapy until after my 2nd MRI. I ended up going on Rebif. It wasn't my first choice because of side effects, but it was the most practical choice because of the co-pay ...
Read more : Rebif/LMX4 Lidocaine topical anesthetic | Views : 1138 | Replies : 0


What about Vitamin B

Do you take B3 and B12 together? Mine has folic acid in it. I think I get headaches from this pill. Would it be the folic acid that does that? How much do you take? Thanks
Read more : What about Vitamin B | Views : 1627 | Replies : 3


My ms regimen, thoughts?

Hello all, this is my first post, I'm a 30yr old male, I live in new zealand and I got diagnosed with ms exactly a year ago, it was terrifying in the beginning, but I have learnt so much about myself and my illness in the process, and now I just try to do the best I can with what I have.
I was going to go onto copaxone in the beginning but could not ...
Read more : My ms regimen, thoughts? | Views : 3921 | Replies : 30


Baclofen, DHC and Amytrip, Vit D and calcium - new regimen

4 weeks ago GP put me on high dose Vit D, calcium, amytrip and diazepam for the EDS and possible MS. Seemed ok, had a couple of patches of 10 day blocks where I felt pretty ok. On top of those meds I take Betaloc for the tachy and codeine for the joint pain.
Still waiting on first Neuro appt (26th April) however over the weekend symptoms deteriorated so badly that things got pretty desperate. ...
Read more : Baclofen, DHC and Amytrip, Vit D and calcium - new regimen | Views : 1415 | Replies : 0


Newbie here with my diet regimen

On Lectin free-no grains, legumes, potatoes, tomatoes and dairy. Lots of fish, venison, veggies, fruit tree nuts and berries, Vit D3 sups and sun when I can get it. Basically Paleo diet. I eat some rice and sweet potatoes for starch fix. Also sugar free. I have been in total remission for 2 years now, no new lesions and feel normal again. Also cognitive issues gone. I know this disease can turn on a dime ...
Read more : Newbie here with my diet regimen | Views : 1821 | Replies : 4


Has Anyone Heard of Protandim

I became aware of this natural supplement. I then learned that Protandim can be used to alleviate the symptoms of MS and that Montel Williams is taking it and has no MS symptoms as long as he continues to take it. I figure that if it's working for Montel and if it really will set back my health clock to when I was 20, what have I got to loose?

I found out that Protandim ...
Read more : Has Anyone Heard of Protandim | Views : 8159 | Replies : 10


High B12, how much dosage to cut

My DH has a MS diagnosis and we started him on supplement B12 since his initial values were low (400 pg/mL) . After 3 months, we did another blood test which revealed his B12 as high (1923 pg/mL)

He was taking a dosage of 2500 mcg daily. Do you think we should completely stop B12 at this point ?

@Jimmylegs, can I please get your opinion on this ?
Read more : High B12, how much dosage to cut | Views : 1619 | Replies : 10


copaxone 2 times a week

OK so I just bought a 30 day supply of copaxone for 1,300.00.
I also found this study online. I can't afford copaxone everyday so I am doing the best I can and this study makes me feel like I'm not so far out there.

By Louise Gagnon

TORONTO -- April 17, 2010 -- Less frequent administration of glatiramer acetate (GA) is better tolerated and appears to have comparable efficacy to daily administration of GA ...
Read more : copaxone 2 times a week | Views : 1963 | Replies : 2


Treating symptoms only

Hi! Right now I've been diagnosed with a demyelinating disease, but not specifically MS. Regular MRIs may alter the dx to MS, but for now I'm only treating symptoms.

I'm taking Amantadine for fatigue and it works really well! But I really do ha be to take it every 12 hours, keeping a steady level. I'm also taking Valium for the jaw pain. That used to help more than it does.

Anyone else taking Valium? ...
Read more : Treating symptoms only | Views : 1575 | Replies : 2


Allodynia regimen

Allodynia is a CNS disorder in which non-painful stimuli is interpreted through neural windup as a painful sensation. It can occur in the spinal cord or in the brain. I am a sufferer (but I do not have MS) and have tinkered for years with my medications in achieving significant relief. Of great concern are the posts of people who've said they've "tried Lyrica, Neurontin, amitriptyline" and so on. Hardly any of these state what ...
Read more : Allodynia regimen | Views : 1094 | Replies : 1


 

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