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Tell us what you are using to treat your MS-- and how you are doing.

High B12, how much dosage to cut

My DH has a MS diagnosis and we started him on supplement B12 since his initial values were low (400 pg/mL) . After 3 months, we did another blood test which revealed his B12 as high (1923 pg/mL)

He was taking a dosage of 2500 mcg daily. Do you think we should completely stop B12 at this point ?

@Jimmylegs, can I please get your opinion on this ?
Read more : High B12, how much dosage to cut | Views : 1659 | Replies : 10


copaxone 2 times a week

OK so I just bought a 30 day supply of copaxone for 1,300.00.
I also found this study online. I can't afford copaxone everyday so I am doing the best I can and this study makes me feel like I'm not so far out there.

By Louise Gagnon

TORONTO -- April 17, 2010 -- Less frequent administration of glatiramer acetate (GA) is better tolerated and appears to have comparable efficacy to daily administration of GA ...
Read more : copaxone 2 times a week | Views : 1987 | Replies : 2


Treating symptoms only

Hi! Right now I've been diagnosed with a demyelinating disease, but not specifically MS. Regular MRIs may alter the dx to MS, but for now I'm only treating symptoms.

I'm taking Amantadine for fatigue and it works really well! But I really do ha be to take it every 12 hours, keeping a steady level. I'm also taking Valium for the jaw pain. That used to help more than it does.

Anyone else taking Valium? ...
Read more : Treating symptoms only | Views : 1588 | Replies : 2


Allodynia regimen

Allodynia is a CNS disorder in which non-painful stimuli is interpreted through neural windup as a painful sensation. It can occur in the spinal cord or in the brain. I am a sufferer (but I do not have MS) and have tinkered for years with my medications in achieving significant relief. Of great concern are the posts of people who've said they've "tried Lyrica, Neurontin, amitriptyline" and so on. Hardly any of these state what ...
Read more : Allodynia regimen | Views : 1132 | Replies : 1


My regimen

Since I’ve been diagnosis with RRMS late spring 2011 I’ve have been going weekly for acupuncture. This has been quite helpful for most of my MS symptoms except for the energy. My feet no longer tingle but are still cold; I can now slice a tomato which I could not hold a knife during my attack, I don’t mumble anymore and I can walk while holding my 17th month old daughter. Furthermore, the blood flow ...
Read more : My regimen | Views : 1972 | Replies : 3


Starting Copaxone soon . . .

I have had MS since 2006, but due to a recent relapse after giving birth, the neurologist STRONGLY suggested I go on copaxone. My biggest concerns are not being able to breast feed and weight gain. My son is 8 months old, so I shouldn't be that upset but I am currently 14#s lighter than my pre-pregnancy and I credit breast feeding for that.

I wonder how common weight gain is after going on Copaxone? ...
Read more : Starting Copaxone soon . . . | Views : 1501 | Replies : 2


Early stage MS Regimen

Hey everyone! I see that a lot of people that post regimens are late stage MS Sufferers. Is it fair to assume that pain medications have stopped responding to the pain? Anyways, here are my daily meds that give me some relief: Oxycodone 15mg IR now 4x a day Soma 300mg 3x day 4th if needed Ativam 1mg at bedtime fish oil capsules magnesium capsules multivitamin b3 vitamin D due to deficiency L Trytophan and ...
Read more : Early stage MS Regimen | Views : 1120 | Replies : 1


My regimen

A moderator posted on here, about dietary supplements which he/she said should include the following:

vitamin b complex (all of them, particularly b12)
vitamin e
vitamin d3
magnesium
selenium
zinc
essential polyunsaturated fatty acids

I was amazed because this is exactly what I take and it works for me! I also follow George Jelinek's diet and take LDN (1.5 years now) and I am practically symptom-free.
Read more : My regimen | Views : 1090 | Replies : 1


MS Attacks Suppressed By Glucosamine-Like Supplement

For those reading the Daflon supplement threads and for those who don't use the General Forum where this is also posted:

Multiple Sclerosis Attacks Suppressed By Glucosamine-Like Supplement

http://www.medicalnewstoday.com/releases/235342.php

Article Date: 03 Oct 2011 - 1:00 PDT

A glucosamine-like dietary supplement suppresses the damaging autoimmune response seen in multiple sclerosis, according to a UC Irvine study.

UCI's Dr. Michael Demetriou, Ani Grigorian and others found that oral N-acetylglucosamine (GlcNAc), ...
Read more : MS Attacks Suppressed By Glucosamine-Like Supplement | Views : 4487 | Replies : 28


Cognitive Strategies and Tactics

So I just spent a good deal of time on the the following link.

http://www.nyas.org/Publications/EBrief ... efe5f6d801

I am preparing to start fall classes. I want to be my old self, although my memory doesn't work quite as well. It means, I need to work differently. Here are the key take aways I got from the link to improve memory when dealing with a large lesion load.

1. Context ...
Read more : Cognitive Strategies and Tactics | Views : 1182 | Replies : 12


 

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