Tell us what you are using to treat your MS-- and how you are doing.
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Post subject: autologous stem-cell transplant Posted: Tue Feb 09, 2010 3:53 pm |
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Hi, I am new to this site. Seems to be full of amazing people full of information and hope and inspiration. I have just completed a autologous non-myeloablative hematopoietic stem-cell transplantation at North Western University Hospital in Chicago. I am looking for anyone else out there who might have gone through the same protocol. The therapy is similar to Revimmune, only there are two phases of chemo. Stem cells are collected and then reinfused when ...
Read more : autologous stem-cell transplant | Views : 2487 | Replies : 8
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Post subject: Difficulty swallowing supplements Posted: Sat Feb 06, 2010 12:48 pm |
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Hi everyone,
I am a firm believer in trying the natural route, having already suffered thru the DMD's with bad results. Whole 'nother topic.
So... a while back I found myself going a little overboard buying every natural supplement on the market if someone had mentioned it would help MS. There were so many, I literally kept them in a garbage bag and wrote the # to take in large numbers on the top of ...
Read more : Difficulty swallowing supplements | Views : 2324 | Replies : 9
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Post subject: Gibbledygook's stents Posted: Sat Jan 09, 2010 9:43 am |
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I had begun a diary on my post-stent experience in the CCSVI section, but I'll be jiggered if I can find it now!!!
It's been 6 months since the operation at Stanford where 3 stents were placed in my jugulars; two 4cmx1cm in both jugulars and an additional 2cmx1cm in my left jugular.
The first 3 months were great and I noticed a significant improvement in bladder control and night spasms, the latter of which ...
Read more : Gibbledygook's stents | Views : 17128 | Replies : 97
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Post subject: Hydrogene Peroxide Posted: Thu Jan 07, 2010 11:42 am |
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Started using hydrogene peroxide on daily basis to energize.Amazing results.My day goes now from 5.00am to 10.00pm in full speed.
Read more : Hydrogene Peroxide | Views : 2135 | Replies : 4
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Post subject: Anyone taking 4-aminopyridine? Posted: Thu Dec 31, 2009 3:38 pm |
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I just started this drug to help with mobility. It's not on the market yet, so I have to get it through a compounding pharmacy. Anyone else on it?
Read more : Anyone taking 4-aminopyridine? | Views : 2030 | Replies : 5
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Post subject: anyone on IVIG??? Posted: Thu Dec 24, 2009 9:34 pm |
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I have not been able to figure out how to post except for this, please excuse me if this is not ok.
Diagnosed 2-97
The main medication I have been on the last 5 years is IVIG. It has been a life saver . Is anyone else familiar with it?
I am extreemly interested in CCSVI as it seems to me a genuine missing piece.
PS Hope I can find any comments and learn to ...
Read more : anyone on IVIG??? | Views : 1842 | Replies : 4
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Post subject: Why do some docs use stents, not others in ccvsi? Posted: Sat Dec 05, 2009 2:20 am |
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Post subject: Treatment confusion Posted: Fri Nov 27, 2009 9:26 am |
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I was finally diagnosed with MS in June, after ignoring minor symptoms for years, and then months of doctors and neurologists dithering.
Being the research freak I am, and having some family members help out, I quickly found Dr Slavin's stem cell program and signed up. I was living in Israel at the time, and he is at the top of the lists of Drs to work with for stem cell therapy, so that much ...
Read more : Treatment confusion | Views : 1815 | Replies : 7
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Post subject: My regimen Posted: Wed Nov 18, 2009 12:59 am |
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ent from having pins and needles in my foot in 2001, within a month it had spread up the left side of my body, dropped foot, then dragged left leg, then ribs and left arm were pins and needles and burning pain, plus vertigo when I closed my eyes in the shower...
Tried to be indipendent, ended up falling over and breaking my good leg, the right one. Turned out to be a good thing, ...
Read more : My regimen | Views : 1529 | Replies : 2
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Post subject: Solumedrol Posted: Thu Oct 22, 2009 7:34 am |
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I've been searching the forums for information about the use of Solumedrol during an exacerbation.
That has always been the standard response from any neuro that I have been with. 1000mg/day IV for 5 days.
I HATE what it does to me- fat and grumpy. Last year an episode hit me that was really life endangering and was continuing to progress. The steroids didn't help.
Right now I've got another one happening that isn't as ...
Read more : Solumedrol | Views : 2007 | Replies : 6
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