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Tell us what you are using to treat your MS-- and how you are doing.

What do you do when you have a flare up?

I am lucky enough that I have not had any flare-ups since those involved with my initial diagnosis. During the first several months, anytime I noticed something weird, like tingling or numbness, or something off with my vision, I would mention to my doctor and ask if it was a flare up.

His response was that there wasn't a real way to be sure...he said he had weird tingling in his leg sometimes but he ...
Read more : What do you do when you have a flare up? | Views : 2217 | Replies : 4

Inosine and neural growth


I'm surprised to report that there may be more to Inosine than just being the precursor to Uric acid.
I learned from this board that uric acid is an antioxidant, usually low in people with MS and helpful to protect against bladder infections etc.

I started taking Inosine as a way to jump start my uric acid.
Then I took the word Inosine as a search term to pub med central and discovered that ...
Read more : Inosine and neural growth | Views : 5748 | Replies : 20

Nitric Oxide and MS

Calabrese, V., G. Scapagnini, et al. (2003). "Disruption of thiol homeostasis and nitrosative stress in the cerebrospinal fluid of patients with active multiple sclerosis: evidence for a protective role of acetylcarnitine." Neurochem Res 28(9): 1321-8.

Recent studies suggest that NO and its reactive derivative peroxynitrite are implicated in the pathogenesis of multiple sclerosis (MS). Patients dying with MS demonstrate increased astrocytic inducible nitric oxide synthase activity, as well as increased levels of iNOS mRNA. Peroxynitrite ...
Read more : Nitric Oxide and MS | Views : 4689 | Replies : 13

Clonidine Diary (for RRMS)

I put on my first patch yesterday @ 4:30pm. Less than 24 hours later I have noticed positive effects.

I'm not getting hungry-sick. You know, the dizzy, dying feeling you get when you don't eat soon enough? My appetite is greatly decreased. I am hungry at the right times but get full much faster. I was able to do the Walmart marathon and go out to lunch without experiencing the usual activity induced buzzing in ...
Read more : Clonidine Diary (for RRMS) | Views : 8895 | Replies : 59

Supplements, diet, and optic neuritis

Hi there,
I'm hoping to get some feedback on my regime. I'm battling optic neuritis (original flare was in March 2012 with improvement but not full recovery and then a worsening in December).

I exercise 5x a week for 45 minutes (running, elliptical, biking) plus 2x a week yoga
I eat gluten & dairy free, tons of green smoothies, fresh fruit and veg, salmon and lean red meats.
I also add to my smoothies coconut ...
Read more : Supplements, diet, and optic neuritis | Views : 5688 | Replies : 11

Blood test results

It makes sense to get a baseline on some things, so that's what I did. I'm using jimmylegs numbers that can be found on the site.

B12 - aim for 500 pmol/L 205 pmol/L - short there - adding B12 to the daily list of pills....
D3 aim for 100 nmol/L - 98 nmol/L - not bad
zinc aim for 18.2-18.4 umol?L - 14.5 umol/L - a tad low I guess
magnesium aim for .91 ...
Read more : Blood test results | Views : 3646 | Replies : 8

Alpha lipoic acid and L-Cartinine

Any of you using this and having any symptom relief Or NOT having any luck with it.
I just started it, I have read it is good for nerve pain. I have also seen a few taking it for fatigue.
Read more : Alpha lipoic acid and L-Cartinine | Views : 6448 | Replies : 15

My "regimen"

First let me state that I do not promote anything, sell anything etc. I started this topic to have a place to write everything and maybe get some feedback. :-D

As I said before I got sick last November, prior to this I had no issues that I could relate to MS. No needles and pins, nothing at all.

Last July I got on a diet ...
Read more : My "regimen" | Views : 8108 | Replies : 21

Starting progesterone tonight.

In the world of birth control, the are called mini-pills.

This drug is called Jolivette.

I'm starting tonight.

Gotta pee!
Read more : Starting progesterone tonight. | Views : 1631 | Replies : 0

Nourishing Traditions--Sally Fallon/Weston Price

Just curious if anyone else (Jimmylegs??) was into the Nourishing Traditions way of eating. I was a vegetarian/vegan for 10 years and was in remission from all my ills for 7 years. Then I was the sickest I had ever been in my life all of a sudden with new neuro symptoms while I was vegan.

The above occurrence and a sudden unexplained craving for flank steak I could not ignore, made me decide to ...
Read more : Nourishing Traditions--Sally Fallon/Weston Price | Views : 3214 | Replies : 4


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