It is currently Thu Jun 21, 2018 6:31 pm

News News of Regimens

Site map of Regimens » Forum : Regimens

Tell us what you are using to treat your MS-- and how you are doing.

Fenofibrate/Tricor diary and AO realignment (RRMS)

Since I can't get a CRH inhibitor, I decided to go further upstream in my attempts to stop the hpa-axis activation. My clonidine experiment leads me to believe something other than regular stress is stimulating hpa-axis. The clonidine worked very well but I had to stop because it was making my blood pressure too low. Slowly and sneakily symptoms started returning. I tried clonidine again and symptoms abated just like when I first started. So, ...
Read more : Fenofibrate/Tricor diary and AO realignment (RRMS) | Views : 5669 | Replies : 19

my regimen so far

copaxone..begrudgingly. i have to finish the study, otherwise the guilt would consume me.
600 mg ibuprofen very rarely as needed for pain
flexeril very rarely as needed for muscle spasms.

1000mg vitamin C (calcium ascorbate)
300mg magnesium citrate
50 mg zinc citrate
1050mg cordyceps sinensis
B-Right B-complex (jarrow formulas)- contains B12 as methylcobalamin (100mcg)
??? IU of vitamin D (blinded to dosage as part of clinical trial)

dairy free
mostly gluten free. ...
Read more : my regimen so far | Views : 1938 | Replies : 8

Steroids and HSCT?

Does anybody know if a short treatment of steroids NOW, prior to HSCT treatment some months later can have a conflict/problem?
Read more : Steroids and HSCT? | Views : 1562 | Replies : 0

B vitamins

I've been looking into vitamins etc to make sure I'm not missing anything that could help my MS. This site has been really helpful in my background research. For example, i'm going to balance my D, zinc, mag. I'm also interested in B vits and have a few questions;

- there are many B vits - are there any that I should be concentrating on more than others? I'm going to ask my GP for ...
Read more : B vitamins | Views : 3253 | Replies : 9

What do you do when you have a flare up?

I am lucky enough that I have not had any flare-ups since those involved with my initial diagnosis. During the first several months, anytime I noticed something weird, like tingling or numbness, or something off with my vision, I would mention to my doctor and ask if it was a flare up.

His response was that there wasn't a real way to be sure...he said he had weird tingling in his leg sometimes but he ...
Read more : What do you do when you have a flare up? | Views : 2320 | Replies : 4

Inosine and neural growth


I'm surprised to report that there may be more to Inosine than just being the precursor to Uric acid.
I learned from this board that uric acid is an antioxidant, usually low in people with MS and helpful to protect against bladder infections etc.

I started taking Inosine as a way to jump start my uric acid.
Then I took the word Inosine as a search term to pub med central and discovered that ...
Read more : Inosine and neural growth | Views : 6001 | Replies : 20

Nitric Oxide and MS

Calabrese, V., G. Scapagnini, et al. (2003). "Disruption of thiol homeostasis and nitrosative stress in the cerebrospinal fluid of patients with active multiple sclerosis: evidence for a protective role of acetylcarnitine." Neurochem Res 28(9): 1321-8.

Recent studies suggest that NO and its reactive derivative peroxynitrite are implicated in the pathogenesis of multiple sclerosis (MS). Patients dying with MS demonstrate increased astrocytic inducible nitric oxide synthase activity, as well as increased levels of iNOS mRNA. Peroxynitrite ...
Read more : Nitric Oxide and MS | Views : 4938 | Replies : 13

Clonidine Diary (for RRMS)

I put on my first patch yesterday @ 4:30pm. Less than 24 hours later I have noticed positive effects.

I'm not getting hungry-sick. You know, the dizzy, dying feeling you get when you don't eat soon enough? My appetite is greatly decreased. I am hungry at the right times but get full much faster. I was able to do the Walmart marathon and go out to lunch without experiencing the usual activity induced buzzing in ...
Read more : Clonidine Diary (for RRMS) | Views : 9406 | Replies : 59

Supplements, diet, and optic neuritis

Hi there,
I'm hoping to get some feedback on my regime. I'm battling optic neuritis (original flare was in March 2012 with improvement but not full recovery and then a worsening in December).

I exercise 5x a week for 45 minutes (running, elliptical, biking) plus 2x a week yoga
I eat gluten & dairy free, tons of green smoothies, fresh fruit and veg, salmon and lean red meats.
I also add to my smoothies coconut ...
Read more : Supplements, diet, and optic neuritis | Views : 5920 | Replies : 11

Blood test results

It makes sense to get a baseline on some things, so that's what I did. I'm using jimmylegs numbers that can be found on the site.

B12 - aim for 500 pmol/L 205 pmol/L - short there - adding B12 to the daily list of pills....
D3 aim for 100 nmol/L - 98 nmol/L - not bad
zinc aim for 18.2-18.4 umol?L - 14.5 umol/L - a tad low I guess
magnesium aim for .91 ...
Read more : Blood test results | Views : 3788 | Replies : 8


Login  •  Register


Total posts 243378 • Total topics 26755 • Total members 17866

Contact us | Terms of Service