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Tell us what you are using to treat your MS-- and how you are doing.


Deep Brain Stimulation

Has anyone had this surgery performed? I will be seeing someone in a few months for a Q&A. I don't even know if I qualify.
Read more : Deep Brain Stimulation | Views : 2114 | Replies : 1


Tremors

Any advice about something to help with these annoying and embarrassing tremors? I take 100 mg of Primidone twice a day but things just keep shaking!
Read more : Tremors | Views : 1039 | Replies : 1


Why did you choose your meds...this is confusing.

hello -

i was recently 'not yet' diagnosed with MS. but, it certainly appears to be on the horizon once all my testing is complete. my dr has given me some options on which medication to start taking.

i have read thru all of their marketing info and ended up with more questions than answers. i'm also found myself being quite the cynic over the whole process.

my choices have narrowed to Avonex, Rebif, or ...
Read more : Why did you choose your meds...this is confusing. | Views : 2681 | Replies : 16


Updated Regimen

30 year old Male

Daily Copaxone Injection around 10pm

Morning:
As needed 100mg Modafinil (Modapro, or Modalert)

With Food:
81mg Bayer low dose Aspirin
600mg NAC (N-Acetyl-L-Cysteine)
400mg COQ10
1000mg Fish Oil
Lion's Mane Capsule
750mg Aniracetam (depending on how I feel)
130mg DMAE

Lunch:
750mg Aniracetam
1000mg Fish Oil
600mg NAC (N-Acetyl-L-Cysteine)
Multi Vitamin

Dinner Night:
1200 NAC (N-Acetyl-L-Cysteine)
500mg ALCAR (Acetyl-L-Carnitine)
2000mg Fish Oil
Lion's Mane Capsule

I would say the biggest and ...
Read more : Updated Regimen | Views : 1186 | Replies : 0


Anyone use Aniracetam?

Been reading a lot about Aniracetam and its positive effects. Anyone with MS have any experience?

http://en.wikipedia.org/wiki/Aniracetam
Read more : Anyone use Aniracetam? | Views : 1032 | Replies : 0


Logical assumptions about treatments - (rant)

All opinionated rant:

Fingolimod was developed by studying the fungus that grows on insects, eventually killing the host and sprouting fruiting bodies. Scientists studied it for the factor which suppressed the immune system of the host and then isolated it and simplified it. I think that the substance they found was a necroptosis inhibitor that actually kept the host alive until it was done with it. This may be the reason why it also causes ...
Read more : Logical assumptions about treatments - (rant) | Views : 4101 | Replies : 2


Regimens for Neuroprotection

On my doctor's advice (not a neurologist), I've started the following regimen. I'd asked her for a recommendation on supplements to take to limit neurodegeneration and as a best hedge against neuronal atrophy. I now take these daily in addition to Copaxone and verapamil (migraine prevention).

This regimen includes selegiline (l-deprenyl), which is a prescribed medication. I take selegiline at a low daily dose of 5mg. The claims about reducing excitotoxic damage (I understand this ...
Read more : Regimens for Neuroprotection | Views : 6708 | Replies : 43


Canadian Petition

There is a petition that Canadians hoping to bring Vascular Angioplasty to Canada can sign. It is going to the Quebec Legislature but all Canadians who want it brought here would be wise to sign it - What is good for Quebec re MS is good for all of Canada. The URL is https://www.assnat.qc.ca/fr/exprimez-vo ... index.html

It is in French so if you have a language problem, there is ...
Read more : Canadian Petition | Views : 1034 | Replies : 0


CCSVI testing denied due to use of IVIG?

Hi all-- asking this for a friend. She recently tried to get scheduled for CCSVI testing and treatment, but was told she couldn't because she's on IVIG? Anyone else have this problem?

I don't know if it's specific to IVIG, since I have a friend on Tysabri, who was able to get scheduled with no problems. I am also on Tysabri and working on getting scheduled, so I don't know if it's because of IVIG ...
Read more : CCSVI testing denied due to use of IVIG? | Views : 1161 | Replies : 2


 

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