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Tell us what you are using to treat your MS-- and how you are doing.

Why did you choose your meds...this is confusing.

hello -

i was recently 'not yet' diagnosed with MS. but, it certainly appears to be on the horizon once all my testing is complete. my dr has given me some options on which medication to start taking.

i have read thru all of their marketing info and ended up with more questions than answers. i'm also found myself being quite the cynic over the whole process.

my choices have narrowed to Avonex, Rebif, or ...
Read more : Why did you choose your meds...this is confusing. | Views : 2651 | Replies : 16


Updated Regimen

30 year old Male

Daily Copaxone Injection around 10pm

Morning:
As needed 100mg Modafinil (Modapro, or Modalert)

With Food:
81mg Bayer low dose Aspirin
600mg NAC (N-Acetyl-L-Cysteine)
400mg COQ10
1000mg Fish Oil
Lion's Mane Capsule
750mg Aniracetam (depending on how I feel)
130mg DMAE

Lunch:
750mg Aniracetam
1000mg Fish Oil
600mg NAC (N-Acetyl-L-Cysteine)
Multi Vitamin

Dinner Night:
1200 NAC (N-Acetyl-L-Cysteine)
500mg ALCAR (Acetyl-L-Carnitine)
2000mg Fish Oil
Lion's Mane Capsule

I would say the biggest and ...
Read more : Updated Regimen | Views : 1165 | Replies : 0


Anyone use Aniracetam?

Been reading a lot about Aniracetam and its positive effects. Anyone with MS have any experience?

http://en.wikipedia.org/wiki/Aniracetam
Read more : Anyone use Aniracetam? | Views : 1012 | Replies : 0


Logical assumptions about treatments - (rant)

All opinionated rant:

Fingolimod was developed by studying the fungus that grows on insects, eventually killing the host and sprouting fruiting bodies. Scientists studied it for the factor which suppressed the immune system of the host and then isolated it and simplified it. I think that the substance they found was a necroptosis inhibitor that actually kept the host alive until it was done with it. This may be the reason why it also causes ...
Read more : Logical assumptions about treatments - (rant) | Views : 4072 | Replies : 2


Regimens for Neuroprotection

On my doctor's advice (not a neurologist), I've started the following regimen. I'd asked her for a recommendation on supplements to take to limit neurodegeneration and as a best hedge against neuronal atrophy. I now take these daily in addition to Copaxone and verapamil (migraine prevention).

This regimen includes selegiline (l-deprenyl), which is a prescribed medication. I take selegiline at a low daily dose of 5mg. The claims about reducing excitotoxic damage (I understand this ...
Read more : Regimens for Neuroprotection | Views : 6587 | Replies : 43


Canadian Petition

There is a petition that Canadians hoping to bring Vascular Angioplasty to Canada can sign. It is going to the Quebec Legislature but all Canadians who want it brought here would be wise to sign it - What is good for Quebec re MS is good for all of Canada. The URL is https://www.assnat.qc.ca/fr/exprimez-vo ... index.html

It is in French so if you have a language problem, there is ...
Read more : Canadian Petition | Views : 1027 | Replies : 0


CCSVI testing denied due to use of IVIG?

Hi all-- asking this for a friend. She recently tried to get scheduled for CCSVI testing and treatment, but was told she couldn't because she's on IVIG? Anyone else have this problem?

I don't know if it's specific to IVIG, since I have a friend on Tysabri, who was able to get scheduled with no problems. I am also on Tysabri and working on getting scheduled, so I don't know if it's because of IVIG ...
Read more : CCSVI testing denied due to use of IVIG? | Views : 1149 | Replies : 2


Recent Diagnosis of CIS - going down hookworm route with AIT

Hi

In November I had an acute bout of optic neuritis. Prior to this had suffered on and off paraethesia in my feet. Typically fobbed off by my clown of a GP ion the UK. ON started in UK when I was on repat from Middle East. Spent 4 wasted days being messed about by halfwits at Addenbrookes Hospital in Cambridge making wrong diagnosis.

Flew back to ME and was assessed, MRi'd, and treatment started ...
Read more : Recent Diagnosis of CIS - going down hookworm route with AIT | Views : 11672 | Replies : 60


what to do now?

Ok, here's my story (as truncated as possible). I ...
...was diagnosed 10/01
...have been on all 4 injectibles and one dose of Tysabri - when it was called Antegren (and even on
those drugs, I was relapsing 3-4 times/year)
...started the Best Bet/MS Recovery Diet February 2009
...just finished my last dose of Novantrone in April (and have been relapse free since my first dose
in the summer of 2006)
...started Ampyra in May ...
Read more : what to do now? | Views : 1226 | Replies : 3


Overwhelmed with supplement info!!! Advice please??

Hi All,

I was diagnosed with rrms June of last year (2009) I have recently started Copaxone (3 weeks) and all my neuro ever suggested for me was 4000 units of D3 and 1300mg of calcium daily........I have read through some threads on supplements,as well as checked out some links that members have posted and I feel absolutely STUPID. I don't really understand too much about them, and know I should probably have some tests ...
Read more : Overwhelmed with supplement info!!! Advice please?? | Views : 3827 | Replies : 39


 

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