This Is MS Multiple Sclerosis Community: Knowledge & Support

**Posted:** Fri May 15, 2009 4:28 am

This might give some help for HDC patience...
http://www.physorg.com/news161544273.html

--Frank

**Posted:** Thu May 14, 2009 8:35 pm

So, just an update.

I went to IPOP on Monday and Tuesday. My counts were still good (white counts and neuts in the 5000 range). Had off on Wednesday. Went in today (Thursday) and my counts are in the 2200 range. Everything else looks good. They removed the two little stitches.

I'm off from IPOP tomorrow (Friday)....and if on Saturday my counts are good (meaning I don't need any transfusions or anything), I will again ...

**Posted:** Sun May 10, 2009 1:38 pm

hi everyone,

Well, I've survived days 3 and 4 of the chemo with no major problems!

Yesterday they ran an iron transfusion and I seemed to have slight side effects from it (chest pain), but nothing too major. They ran a few tests and I was fine.

Today was my final dose. They ran it earlier in the day (at noon) so that I can leave the hospital this evening at 8pm.

This round went ...

**Posted:** Sun May 10, 2009 9:53 am

There is a study out looking for people that have MS disease. It is called HALT-MS. It uses cancer drugs and stem cells. It is in three locations in the USA. If you google HALT-MS you should be able to find information about this study.
It is also in Medical News Today under the MS section.

**Posted:** Sat May 09, 2009 10:18 am

Well, I'm a little behind in updating!

After my first dose of chemo....that night I awoke at 2am feeling a little bit nauseous. Not a lot - but some. They gave me something for it and back to sleep I went.

I slept most of day 2. Nothing really to report. At 5pm they ran my second dose.

Oh, a little earlier in the day, I managed to get the nurse to unhook me from ...

**Posted:** Thu May 07, 2009 5:43 pm

I used Copaxone about 5 ago with no significant problems. I started again on Monday and I've been kind of depressed and have a more difficult time with cognition. Has anyone else had similar problems?
Thanks, Ron

**Posted:** Thu May 07, 2009 4:49 pm

Well, Day 1 is winding down nicely.

Started this morning by having the Hickman line placed....and then I was brought directly to my room. They started hydration shortly thereafter. Had to have a repeat sinus CT as the one I had 2 weeks ago was NOT clear....so they did another.

First dose of chemo came a lot earlier than anticipated: 5pm! (last time it was close to 10pm!)

Went in without a hitch and it's ...

**Posted:** Thu Apr 30, 2009 5:56 pm

I just got the OK to quit it if I want to. They told me they wanted a year on the Copaxone.

I asked if I could quit and he said, "If you like it and want to keep using it go for it, if you don't like it you can quit, if your in the middle it may be a tough choice for you."

I love how he let me decide. My choice. I ...

**Posted:** Sat Apr 25, 2009 8:44 am

I just got an email via someone through my site who is going to JH for HiCy. They told me they talked with Carrie and in Sept they are going to start trying something different.

1. HiCy and then Tysabri
2. HiCy and then Copaxone
3. 3 different dose amounts based on a blood test they have developed.

I am trying to find out what the blood test is because that has me fascinated!

So ...

**Posted:** Sun Apr 19, 2009 9:19 pm

Hi,

Looks like my re-dose is going to have happen in early May.

Anyone visiting Hopkins in May? Wanna visit me, too?

As of now, the 4 days that are in-patient receiving chemo, I will be there alone. :(

I'm scared as heck this time as someone told me that the cytoxin has a cumulative effect. I didn't get sick at all last time and it worried ...

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