Hello All,

Mel's first dose of HicY was April 24th 2008.

So here we are nearly a year on and she had her latest MRI and all is good, well all is excellent.

No enhancing lesions.
No spinal lesions.
No black holes.
Stable and reduced existing lesions.

No signs of activity at all.

The best news is this is the second MRI that states no black holes, when diagnosed she had two black holes (and ...

I am so glad to find this forum! I received my final dose of high dose cytoxan on March 19th and have been home for two weeks. I am a 43 year old woman diagnosed with RRMS in '94. Progressed to SPMS in '00 and have experienced slow disability (especially gait) since then. Progression really picked up about three/four years ago and none of the conventional treatments helped.

My neurologist (Dr. Ugo Goetzl of Raleigh ...

I thought this may be nice to show for my one year anniversary and to show some clinical proof HiCy works.

http://www.chrishasms.com/gallery/v/iImprovements/

I decided to get a new MRI. I had this disease for over a decade and a half. Always considered RRMS, but not sure if the most recent MRI will show any enhancement so I have to admit I am a little nervous. Funny I used to be worried I would show active lesion, now I am worried I might not.

At any rate, I thought I would start off getting an MRI to see ...

Mon AM- Water 45 min
Mon PM- Bowflex

Tues AM- Land gait training 45 min
Tues PM- Bowflex

Wed AM- Water 45 min
Wed PM- Bowflex

Thurs AM-Water 45min
Thurs PM- Bowlflex

Fri AM- Land gait training 45 min
Fri PM-Bowflex

This is my PT schedule until the 1st week of June. Remember, we are trying to have me walking without my cane for the 25 foot walk by June and by September maybe we ...

Had my 9 month at Hopkins. I should preface this by saying that my symptoms have increased over the last 2 months but no reactivation. I will list them to get them all in:

1. more numbness in hands and great loss of dexterity. I am having trouble brushing and bathing- still better tham before HiCy. That peg test was almost impossible.

2. Spasticity in my legs- particularly right one is really bad- timed walk ...

Dear Chris Young:

We appreciate your interest and enthusiasm regarding cyclophosphamide, a life-sustaining and well-established chemotherapy agent.

There currently is ample supply of cyclophosphamide, and Baxter
continues to make it available to its customer base, including Accentia,
the makers of Revimmune. It’s important to note that the intended and
approved use of cyclophosphamide is as a chemotherapy agent, and Baxter does not currently have approval for cyclophosphamide’s use in addressing multiple sclerosis (MS). However, as ...

Hi,
I just discovered this site today!! I was dx with RRMS 7/05, based on my workup we believe I had symptoms as early as 1996. I started Rebif 44mcg 3xs/wk and stayed on that therapy until I was diagnosed with Ewing's Sarcoma (bone cancer) 11/20/06. I had 1 exacerbation (4/06) between my MS dx and my cancer dx. Nystagmus - solumedrol resolved it.

I took a TON of chemo from 12/06 - 9/14/07. Adriamycin, ...

I have realized it is now OK for me to tell more.

I went back to Johns Hopkins for an investor meeting with Baxtor Pharm. in June to promote the Revimmune treatment. These guys from what I could tell were all on board and then the stock market tanked in Sept.

So, if we want to get the money from Baxtor to make Revimmune the norm this is where to go:

...