This Is MS Multiple Sclerosis Community: Knowledge & Support

**Posted:** Mon Mar 09, 2009 5:04 pm

Hi Everyone,

Well, it's a go. I'm on schedule to re-dose at the end of April. Still not 1000% positive of this choice - mainly b/c pulling it all together seems like much more of a hurdle this time. I may have to hire "help" to be with me. :(

I had a MRI on Friday. It did not show any enhancing lesions and the previous one ...

**Posted:** Fri Mar 06, 2009 7:14 pm

It's this one: http://www.mountvernonbaltimore.com/

Gah...this trip is costing me an arm and a leg. How did you guys afford it???

8O

**Posted:** Wed Mar 04, 2009 10:57 pm

so, I'm talking with Drs. Brodsky, Kerr, and Hammond....

I am seriously thinking that I will re-dose.... just need to decide when and how soon, I guess...

Very upset by all of this.... but as I sit here with an IV in my arm....I'm pretty darn miserable all around.

~keri

**Posted:** Tue Mar 03, 2009 3:38 pm

I see Dr. Kerr on July 29th and Dr. Brodsky on August 4th.

I picked summer dates because I will be in school until the end of May.

Thanks, Chris (and everybody else) for encouraging me to be persistent!!

XO,
Me
:D

**Posted:** Sun Mar 01, 2009 7:43 am

If I read correctly revimmune is still being tested and they are doing randomized testing? Anyone know what phase they are in and when and if this will be available to everyone?

I find it crazy that we can get tysabri and soon campeth and some other IV drug which in my opinion seem to be far more dangerous yet revimmune is not offered to us in the same way. Can anyone explain to me ...

**Posted:** Sun Mar 01, 2009 12:58 am

Hi everyone,

Well, I hate having to report this, but it appears I am in another exacerbation. This is my second once since treatment in July. As you know, the first was in December and according to the MRI there was activity.

I saw my local neurologist on Friday...and according to the exam and symptoms present, it definitely appears to be a new exacerbation and not just continued from December.

I have weakness/numbness on the ...

**Posted:** Thu Feb 26, 2009 9:24 pm

So, when I was at JH a few weeks ago, they tested my Vitamin D.

I just received the results.... a 6. Normal is 20-100! So they put me on vitamin D.

wonder if anyone else was tested....

~Keri

**Posted:** Thu Feb 26, 2009 6:00 pm

February MRI report in excerpts-

"Since the prior study in Nov the perivetricular plaques show mild improvement. The plaque above the posterior aspect of the left ventricular body has nearly healed. The small plaque on the left side of the splenum is slightly smaller. No enhancing plaques. The enhancing plaque previously see no longer enhances and has appeared to heal.

Impression

Improved mild cerebral and posterior fossa demyliation.

Back to me---not to bad eh?? The ...

**Posted:** Wed Feb 25, 2009 6:00 pm

This abstract looked at a population of 23 patients who underwent high-dose cyclophosphamide treatment, and concludes that the treatment was very effective in treating RRMS, but ineffective in treating SPMS and PPMS patients. This pretty much confirms what most of us have been hearing about the treatment...

http://www3.interscience.wiley.com/jour ... 1&SRETRY=0

**Posted:** Wed Feb 25, 2009 2:35 pm

Well what did they say?

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