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A board to discuss the newly-released drug Tysabri, (formerly known as Antegren) as a treatment for Multiple Sclerosis

Considering Tysabri

Hi Everybody,

I'm thinking about Tysabri, see my doctor on 04/18. I'm eligible for it, checked yesterday with my insurance company. According to them, they could have it set up and sent out to my doctor in 3 business days!

I know the history of T, and my drug history... my tentative plan is, if it works, then take it for 1-2 years until we have the next super-duper drug available with less known bad ...
Read more : Considering Tysabri | Views : 10394 | Replies : 40


Discontinuing Tysabri due to worsening

It's great that everybody is having such good results with Ty, but I have just decided to STOP after 5 infusions, because of continued worsening of symptoms. No improvements at all... not even a tiny bit! Now, I should consider myself "lucky", since I only have leg weakness and inability to walk unaided. NO other symptoms, except poor circulation in feet due to lack of walking. I have been on a steady decline over the ...
Read more : Discontinuing Tysabri due to worsening | Views : 2946 | Replies : 2


Message for All Current Tysabri Patients

Hi everyone,

As some of you know, I was one of the MS patients that testified (via video) before the FDA AC Hearings on March 7, 2006, in an effort to voice a patient's opinions re: Tysabri and try to bring Tysabri back to those of us who want/need it as an option to fight our disease.

A small group of us formed the all-volunteer non-sponsored website http://www.mspatientsforchoice.org/ that provides accurate and up-to-date information on ...
Read more : Message for All Current Tysabri Patients | Views : 2494 | Replies : 0


TYsabri is back!

I am glad TYSABRI is back! I was on it once in January 2 years ago. I took my husband to NY for his 40th birthday in February and remember waking up that Saturday (2 weeks after my infusion) and turning to my husband and saying "I feel normal" I kept waiting for side effects and they never came. It was pulled off of the market right before my second treatment. I was bummed and ...
Read more : TYsabri is back! | Views : 2220 | Replies : 2


Tysabri infused in Canada

I was talking to the Biogen/Tysabri toll-free help line yesterday and Monday and according to them the first two Tysabri infusions were to take place today in the northern Ontario (central Canada) city of Sudbury (2001 population - approximately 155,000).

So it looks like Tysabri has arrived in Canada. :)

Any Canadians out there who have been infused could you please share your experiences.

From the sunny ...
Read more : Tysabri infused in Canada | Views : 2395 | Replies : 2


tysabri update after third infusion

I had my third Tysabri infusion on Jan. 12 and I want to share the little things I've been noticing:
Once in a while, I take a few "normal" steps.
The numbness in my left hand comes and goes, but has nearly gone away.
I am not so tired.
The ringing in my right ear has lessened and has even gone away for a few seconds at a time.
Sometimes I can freely move my ...
Read more : tysabri update after third infusion | Views : 10712 | Replies : 24


I love Tysabri!!

I had my first Tysabri infusion on December 8. I was EXTREMELY nervous, but I had been on Betaseron for 3 years, and I suffered 2 exacerbations within 5 months, the 2nd of which took me out of work for 4 months! I had developed some spinal cord lesions, which caused some sensory issues in all of my limbs. I had a mild headache the evening of my first infusion, but I took some advil, ...
Read more : I love Tysabri!! | Views : 5590 | Replies : 13


how much are you paying for Tysabri?

My friend is DESPERATELY trying to get his Ty. Been approved by TOUCH, but has a $%&**^%$ Neuro, in my opinion. A long story, but I will condense. He dropped his Medicare supplement because of price. Had to get it back because Neuro wouldn't consider Ty without it. Now, after MUCH run around, the place that would take his Medicare Part B and the Blue Cross Blue Shield Supplement, wants $500.00 up front each visit. ...
Read more : how much are you paying for Tysabri? | Views : 2644 | Replies : 3


Franks Tysabri exp., little sideeffects, no improvement

Hi,

I'm 30yo, EDSS around 2, currently 12 years with RRMS now. I live in germany and just got my 3rd Tysabri infusion.

I noticed mild sideeffects, like little headache on the infusionday and some occasional dizzynes.

I cant report any improvement so far but I'll be happy if things wont get worse.

I'll be back if things change...

--Frank
Read more : Franks Tysabri exp., little sideeffects, no improvement | Views : 16762 | Replies : 50


Hope I'm not repeating myself!

Hi guys, I'm new here and not sure if my original post a few minutes ago went through. I asked if anyone who is on Tysabri also has shingles. I'm in my early 50's and just found out yesterday that I have shingles! :evil: I'm in the process of getting signed up for the Touch program. I just read in the Tysabri info book ...
Read more : Hope I'm not repeating myself! | Views : 1892 | Replies : 0


 

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