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A board to discuss the newly-released drug Tysabri, (formerly known as Antegren) as a treatment for Multiple Sclerosis

MS & Seizures

Is this common to have seizures? My husband has had 7 since March...begins with a very bad headache. He was diagnosed with MS 7 months ago. MS came out of no where... Seizures come out of no where... bad headaches are the only warnings...
Read more : MS & Seizures | Views : 2018 | Replies : 1

2nd infusion

I have been out of touch for a couple of weeks so I didn't know about all the insurance stuff going on over Tysabri. It was predictable I guess. At the risk of sounding ______________ (fill in the blank) I am having my second infusion on Wednesday of next week.

I did not fill dramatic difference with the first infusion. No bells, whistles, drums. Having said that, prior to the first infusion, I was starting ...
Read more : 2nd infusion | Views : 2467 | Replies : 3

Tysabri in the UK

For those in the UK some news on Tysabri. If NICE give approval, I imagine that Tysabri could be available in the UK starting spring next year.


PS Harry - Biogen are taking over the world and there's nothing you can do about it. :lol: If you are bored with Tysabri - you could turn you attention to Rituximab.
Read more : Tysabri in the UK | Views : 2321 | Replies : 2

Nationwide List of TOUCH cert. infusion centers available!

as a member of MSPatientsForChoice, I posted the following on my Blog-Living With MS (http://lauren-livingwithms-aolcomlglbgl ... ) :P :


MS Patients For Choice.Org Now Has Tysabri Infusion Sites

There are still a few bugs to work out, but the website now ...
Read more : Nationwide List of TOUCH cert. infusion centers available! | Views : 8278 | Replies : 0

Tysabri reworked!!!

Wow - read this:

Tysabri's been REWORKED now so that there is only a 1 in 1000 chance of getting a serious viral infection of the brain. Ho ho ho.

The worthlessness of this statistic that is endlessly repeated makes it almost laughable. Only here on this site have I read analyses that are meaningful, but which seem to elude almost everyone else because they are so hung ...
Read more : Tysabri reworked!!! | Views : 2660 | Replies : 6

Assistance to MS Patients with Insurance Co-payments

Interesting info from an other messageboard.

MS ActiveSource and MS Patients For Choice

In the next week or so, people can call MS ActiveSource at 1-800-456-2255, give them a ZIP Code, and they will be able to provide contact information for a couple of nearby TOUCH-enrolled neurologists and infusion centers. I was told ten days ago that this was being put in place, but it is still not quite ready. Today, I received an email ...
Read more : Assistance to MS Patients with Insurance Co-payments | Views : 3964 | Replies : 11

Who gets tysabri in the US?


We recently received information from our hospital here in Sweden that Tysabri only will be administered to those patients that have a severe version of RRMS. I am very interested in knowing what the strategy for administering tysabri in the US is? Is it for all RRMS sufferers or do they make a disticntion in the deegree of severity?

I guess I am looking for arguments to influence those in charge of the policy ...
Read more : Who gets tysabri in the US? | Views : 4156 | Replies : 5

Getting appointments for Infusions

I know this has been going on with other posts in this forum. Just thought I would start a new thread so others may see. If you haven't been keeping up on the "Extremely Restless" thread, you are unaware that there are problems to actually getting your Tysabri appointments set up.
Here is Gary's latest update:
Nurse of Neuro called this morning. They are setting up MRI's of the brain for everyone trying for the ...
Read more : Getting appointments for Infusions | Views : 3785 | Replies : 9

Extremely Restless

Is anyone scheduled to get Tysabri this month?
Read more : Extremely Restless | Views : 14867 | Replies : 76

Tysabri article

Tysabri article. Me thinks that Harry Z might have penned this.
Read more : Tysabri article | Views : 1944 | Replies : 1


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