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A board to discuss the newly-released drug Tysabri, (formerly known as Antegren) as a treatment for Multiple Sclerosis

PML Cases now reach 439!

Last month the number of Biogen reported Tysabri related cases jumped by 9 making the new total 439. Don't know if any more deaths are included in this number. Unfortunately, it just isn't getting any better.
Read more : PML Cases now reach 439! | Views : 1696 | Replies : 7

Efficacy and safety of natalizumab in multiple sclerosis

Efficacy and safety of natalizumab in multiple sclerosis: interim observational programme results


BACKGROUND: Clinical trials established the efficacy and safety of natalizumab. Data are needed over longer periods of time and in the clinical practice setting..... Read More -
Read more : Efficacy and safety of natalizumab in multiple sclerosis | Views : 1646 | Replies : 5

HIV drug may help in PML

A relatively simple way to make progressive multifocal leukoencephalopathy (PML) more survivable appears to have worked in a multiple sclerosis patient taking natalizumab (Tysabri)....... Read More -
Read more : HIV drug may help in PML | Views : 1526 | Replies : 1

PML cases now reach 430

Latest "reported" cases of PML has risen by 7 last month to 430. Not known if any more related deaths.
Read more : PML cases now reach 430 | Views : 2132 | Replies : 13

PML cases now reach 423

PML cases have jumped 5 more from last month...up to 523. Not known if any additional deaths took place.
Read more : PML cases now reach 423 | Views : 1708 | Replies : 4


I'm new to the forum but I'm currently on tecfidera and have been on it for 4 months. I was on Gilenya and didn't have any relapses but decided to change after a year because of hair loss and headaches. As soon as I came off Gilenya I had major relapse transitioning to tecfidera. It took me almost two months to recover from this last relapse. I regret coming off Gilenya now but my Doc ...
Read more : Rebound | Views : 1542 | Replies : 2

Tysabri to start soon......

My neuro wants me to start Tysabri. I have done all kinds of research and read on this page. My thoughts have been scrambled on this issue for days. I just had JC bloodtests. He said his paitents both JC + and - are on it. I've Bernard on Copaxone, tecfidera and avonex and been sicker to different degrees on them. Life is too short to be sick 5 out of 7 days a week. ...
Read more : Tysabri to start soon...... | Views : 2315 | Replies : 13

relapse or something worse?

Hello all, I am brand new to the community. I was diagnosed with relapse/remitting MS in 2008. After a year or so on Copaxone, I got lazy and stopped taking the drug and my doc put me on Tysabri about two and a half years ago. All was going well until may/june of this year when I went in for my treatments every five weeks instead of the standard four week schedule. I did this ...
Read more : relapse or something worse? | Views : 1640 | Replies : 3

JCV index

I am JCV+. I used tysabri 73 times. I switched to tecfidera, used it for 4 months.
My neuro had me stop taking it. I had 1 flare and developed psoriasis while on tecfidera.
I want to get back on tysabri. I did the index blood test and I am a .46.
Does anyone know what this means? I want to know what my risk of PML is.
I have used Avonex, Rebif, Tysabri, and ...
Read more : JCV index | Views : 2843 | Replies : 8

PML Cases now reach 418

As of November 5, there are now 418 known cases of PML, 8 more than from the previous month. Don't know if there are any more deaths.
Read more : PML Cases now reach 418 | Views : 1401 | Replies : 0


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