After first infusion no change in progression

Discuss Ocrelizumab, a monoclonal antibody treatment for MS.

After first infusion no change in progression

Postby vender » Tue Sep 11, 2018 6:04 am

Hello all after my first infusion five months ago I feel no different at all. I am coming up on my second infusion and was wondering should I even bother?
I feel as if everything is progressing at the same alarming rate. I have been told after the first infusion I should feel better but I am not.
I am PRMS.
vender
Family Member
 
Posts: 40
Joined: Tue Oct 06, 2015 12:55 pm

Advertisement

Re: After first infusion no change in progression

Postby jimmylegs » Tue Sep 11, 2018 9:12 am

i can't comment but from xp but it is good to hear yours, even if it's nasty that it's not alleviating your problems. i had a bit of an episode earlier this year and the pressure is on to get me into the drug client demographic. ocrevus is on the list of options i'm meant to be considering.
so far, from my perspective the episode taught me only not to get overconfident followed by lazy re self care!
take control of your own health
pursue optimal self care at least as actively as a diagnosis
ask for referrals to preventive health care specialists eg dietitians
don't let suboptimal self care muddy any underlying diagnostic picture!
User avatar
jimmylegs
Volunteer Moderator
 
Posts: 11584
Joined: Sat Mar 11, 2006 4:00 pm

Re: After first infusion no change in progression

Postby Anonymoose » Tue Sep 11, 2018 11:18 am

Hey guys,

I posted a link in a response to vender’s other current post re:walking. Don’t have time to dig up that link again but it lists some micronutrients essential to Rituxan’s (cd20 mab like ocrevus) effectiveness.

Rituxan seems to have done well by me. Should be starting round two tomorrow but billing issues. Sigh.

‘Moose
Anonymoose
Family Elder
 
Posts: 1139
Joined: Tue Oct 09, 2012 7:33 am


Return to Ocrevus (Ocrelizumab)

 


  • Related topics
    Replies
    Views
    Last post

Who is online

Users browsing this forum: No registered users


Contact us | Terms of Service