A board to discuss the Multiple Sclerosis modifying drug Rebif


Postby KrisROLLTIDE » Fri Oct 29, 2010 5:50 am

I have had it with this drug. My hair is falling out, my head hurts, I can't sleep and the fatigue I deal with is horrible. I have been on Rebif for 2 years and wonder if I feel like this because of the drug or my MS. I feel like a shell of my former self. So I am going off the Rebif to see if it helps, I can always go back on them if necessary. Let's see how this goes and if there is any improvement without the shots.
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I hear ya

Postby Andie » Fri Oct 29, 2010 8:14 am

i quit rebif about 2 weeks ago after only 2 months-- totally horrible drug-- i lost hair- felt terrible and slept all my weekends away--- however now my neuro says fine- let's do tysabri-- and I'm more scared of that so looks like it's back to rebif--by the way since i've been off rebif i've had optic neuritis and numbness in feet and hands that i've never had before.....coincidence?? who knows.

take care
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Postby Bubba » Sun Oct 31, 2010 4:00 pm

i guess the side effects of Rebif are as unpredictable as MS. I have heard alot of horror stories. Been on Rebif for two years and haven't had any problems (knock on wood)
w/m 44
The problem comes with the decision of weighing the unknown with the unknown.
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Postby 81Charger » Mon Dec 13, 2010 4:49 pm

How have yo made out since going off of Rebif any change? hopefully for the better!

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