This Is MS Multiple Sclerosis Community: Knowledge & Support

I have had it with this drug. My hair is falling out, my head hurts, I can't sleep and the fatigue I deal with is horrible. I have been on Rebif for 2 years and wonder if I feel like this because of the drug or my MS. I feel like a shell of my former self. So I am going off the Rebif to see if it helps, I can always go back on them if necessary. Let's see how this goes and if there is any improvement without the shots.

i quit rebif about 2 weeks ago after only 2 months-- totally horrible drug-- i lost hair- felt terrible and slept all my weekends away--- however now my neuro says fine- let's do tysabri-- and I'm more scared of that so looks like it's back to rebif--by the way since i've been off rebif i've had optic neuritis and numbness in feet and hands that i've never had before.....coincidence?? who knows.


take care
Andie

i guess the side effects of Rebif are as unpredictable as MS. I have heard alot of horror stories. Been on Rebif for two years and haven't had any problems (knock on wood)

_________________
w/m 44
The problem comes with the decision of weighing the unknown with the unknown.

How have yo made out since going off of Rebif any change? hopefully for the better!

Glenn