So That's me been taking Rebif for 3 months now (RR for 12 years now, 35 yo). Have taking nothing prior to that except for a relapse last May which required Corticosteroid treatment in hospital.
And now that I've been on 44 mcg, 3x a week (M/W/F) for about 6 weeks, I'm finding it more and more difficult.
The morning after my injection, I am hit very hard and I find it more difficult to walk. It does seem to get better in the afternoon though. I have gradually become a bit bemused psychologically also and the effects of taking it are very apparent. Am I better than prior to taking the drug? Haven't decided yet but it's swinging slowly towards a 'no' at the moment.
The thing is, I notice a vast improvement on the Sunday because I've been more relaxed on the Saturday as I haven't been to work all day. I do actually see improvements in my symptoms..
It seems that any improvements that look as though I can improve upon (through alternative/complementary therapies, yoga, swimming etc.) are ruined because of the frequency of the dose (and the frequency of dealing with the side effect).
I have asked my neurologist about reducing my dose to 22mcg or about reducing the frequency I take the 44mcg but these ideas were cast aside immediately without any offer of possible alternative solutions to my prescription. I'm still suspicious that a change may be of benefit to me though and particularly on reducing the frequency of taking the full dose.
I was hoping that I could get some opinions from anyone who has thought it may be beneficial to change their dose or frequency of taking it (or has actually done this).
Many thanks, Fred.