Stopped Rebif

A board to discuss the Multiple Sclerosis modifying drug Rebif

Postby 81Charger » Tue Dec 08, 2009 9:33 am

Thanks Scooby, mine's doing the same coming & going.

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Postby Bobbi » Sun Jan 03, 2010 2:07 pm

I started on 44 ug Rebif in 1999 when my EDSS was 4.0. I had difficulty with site reactions which lifted after a while. I used Tylenol for the flu-like symptoms and prefered the rebject for easy injections. I had a lot of anxiety with injecting myself. The Rebif seemed to hold my SPMS at bay with no new flare ups.
Now in 2009 my neuro has taken me off, cold turkey, because he felt that there was little evidence that Rebif was still helping. Suggested that I restart only if attacks recur. My EDSS is currently 6.0.
I am considering going back on Rebif if the 'liberation procedure' is too long in the coming.
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Rebif Experience

Postby jjmagpin » Tue Feb 16, 2010 12:19 pm

I wanted to post a comment and would look for any feedback. I started taking Rebif shortly after my diagnosis in 2006. At first on 44 then at the 22 because of liver enzyme issues. I had an MRI recently and my Nero told me that there was some increase in lesions so I should entertain looking at the Tysabri. I stopped the Rebif and have not been taking anything but truth be told, I feel allot better. As noted in other posts, I still deal with the everyday b/s but I actually feel better. I started doing some natural supplements and an aspirin regiment but nothing else. I don't get it...any feedback would be appreciated.
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Stopping Rebif

Postby Bewitched » Wed Mar 17, 2010 6:39 am

Hello Eyedoc,

How are you doing after discontinuing Rebif? Are you happier? Are you on any new treatment?
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Postby EyeDoc » Mon Apr 12, 2010 4:55 pm

I started back on Rebif at the urging of my neurologist, but the sxs returned and I got off of it again. My wife was quite unhappy as she sees Rebif as a way of helping me from further exacerbations so I gave in and now do it just once per week.

I don't know if I feel better or not. I still have the cadre of symptoms that I have always had with MS, and most of them have worsened over the past years, but at least I do not have so many site injection reactions!
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Postby Bewitched » Wed Apr 14, 2010 7:03 am

Dear EyeDoc:

I hope you do very well with your therapy. I, on the other hand, (and, I am not saying for other MS patients to follow my path) am doing very well off all interferon and injection treatments. I stopped injections mid-February and am feeling so much better without them. My neurologist did not advise me to discontinue the therapies, but nonetheless, he says that I am doing very well without them. Maybe, I will reconsider in the future. But, at the moment, life has never been so wonderful. I can work, I can laugh, I can read, I can work out, etc. I can do all the things that I was unable to do when on the therapies. Yes. I did have a slight relapse from stopping the medication a week after. But, it only lasted for about one or two days. Now, I feel like a whole new person. My blood pressure is back down to normal; I don't feel like my head and body are going to explode. I still have MS symptoms but not as debilitating as when on the therapies and their side effects. I've learned to work with my MS symptoms and not against them. This is the little trick I've learned with MS. I feel like a million bucks! And, I really hope everything works out for you and that you feel better each day! God bless.
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