Help for PattiD : Regimens - This Is MS Multiple Sclerosis Community: Knowledge & Support

View unanswered posts | View active topics

Board index » Multiple Sclerosis » Regimens

All times are UTC - 8 hours [ DST ]

Help for PattiD

Page 1 of 1

[ 1 post ]

Print view

Previous topic | Next topic

Author

Message

Anecdote

Post subject: Help for PattiD

Posted: Tue Nov 29, 2005 4:24 am

Family Elder

Joined: Thu Jun 17, 2004 3:00 pm
Posts: 2037
Location: Bedfordshire UK

Quote:

My husband has been on the protocol about 6 weeks, and his progression seems to have increased. His walking seems so tenuous, and his balance has deteriated more. He is falling more.

He quite the Copaxone that he felt was not doing much when he started the protocol. He finished his first flagyl pulse last week.

We are trying to stay positive, but we are fearing this progression will continue. Did anyone have this difficulty walking when they started the protocol? Did it turn around at all? I know it did for Sarah, but anyone else? I keep thinking (hoping) it will get worse and turn around.

His neurologist wants him on Rebif, but he does not want to do that if possible. Any thoughts?

Thanks-PattiD

I have copied this question from the Antibiotics section, can someone other than me please respond, to give her encouragement? I am also putting it on CPn Help.org. Patti is far away in Alaska, so its probably not the best time of year in any case.

Sarah

_________________
An Itinerary in Light and Shadow Completed Dr Charles Stratton / Dr David Wheldon abx regime for aggressive secondary progressive MS in June 2007, after four years. Still improving with no relapses since starting. Can't run but can paint all day.

Top

Page 1 of 1

[ 1 post ]

Board index » Multiple Sclerosis » Regimens

All times are UTC - 8 hours [ DST ]

Who is online

Users browsing this forum: No registered users

You cannot post new topics in this forum
You cannot reply to topics in this forum
You cannot edit your posts in this forum
You cannot delete your posts in this forum

Jump to:

Read hundreds of personal Multiple Sclerosis stories on Experience Project. Experience Project is an anonymous community where people connect through their life experiences, made by the same people who built This is MS. With over 30 million personal stories about every possible life experience, you can quickly find people like you!

Interesting: Secret Confessions | Dream Meanings | Ask Questions, Get Answers

This site does not offer, or claim to offer, medical, legal, or professional advice. All treatment decisions should always be made with the full knowledge of your physicians.