I have copied this question from the Antibiotics section, can someone other than me please respond, to give her encouragement? I am also putting it on CPn Help.org. Patti is far away in Alaska, so its probably not the best time of year in any case.My husband has been on the protocol about 6 weeks, and his progression seems to have increased. His walking seems so tenuous, and his balance has deteriated more. He is falling more.
He quite the Copaxone that he felt was not doing much when he started the protocol. He finished his first flagyl pulse last week.
We are trying to stay positive, but we are fearing this progression will continue. Did anyone have this difficulty walking when they started the protocol? Did it turn around at all? I know it did for Sarah, but anyone else? I keep thinking (hoping) it will get worse and turn around.
His neurologist wants him on Rebif, but he does not want to do that if possible. Any thoughts?
Thanks-PattiD
Sarah
