Tell us what you are using to treat your MS-- and how you are doing.


Postby mom10789 » Sun Jan 20, 2008 6:48 pm

i was feeling so sorry for myself on thurs 10, i called john hopkins to see if i qualified for the REVIMMUNE trial,haven't heard anything back so i will call again this week. when i told my gp i called them, he said i was single minded. first it was LDN, then ABX, then lyme and now chemo and why not in canada. he was just a jerk. joe could tell i was upset and i was starting to slur, so he took over for me.i now know why my husband is such a good manager at work. by the end of the appt he was ready to run any test we might need and he also agreed that if it was his wife he would not stop looking for answers
so at the and of the end of the appt i told him i had another UTI, he gave me an rx for amoxi-i've never taken it before. then he sent me to the hospital for a urine test. called me fri said i did not have UTI. i said you are gonna call me back mon and tell me i do and sure enough they did
i had already started amoxi anyway
tues, when joe was changing me he said shell you've got nasty red stretch marks under your arm pit but then we got busy and i forgot all about it , then the doctors office called and they said they needed me to do an ultrasound on my bladder. now i've had chronic UTI's since nov 06, and because joe spoke maybe i should have tests done now, i was sooooooo mad. but oh well maybe they will find something.
i couldn't sleep fri nite and remembered about the stretch marks so i spent the nite on the net. 2am woke joe up to show him the marks and they look exactly like bartonella rash
now once again i have more questions than answers
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Postby Loriyas » Sun Jan 20, 2008 7:36 pm

So have you stopped taking antibiotics from the protocol? How far did you get and for how long?

I'm sorry your doc was such a jerk to you. It is so unnecessary and one thing you want to count on is your doctor. But at least your husband convinced him to get on board with you. I hope you find some answers
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Postby SarahLonglands » Wed Jan 23, 2008 10:00 am

Shell said in her Not sure" post
i've reaally only stayed on mino because i had to take some other abx for non stop UTI. and sarah was right abx has cleared my head completely
it just looks like my body has alot of different bacteria to deal with
one at a time
thanks for asking

Likewise, I hope you get some answers soon. You really must stick with this, though, ideally the whole protocol, because as you said, your head is so much clearer now, you can think clearly, argue and get annoyed. I couldn't do any of that when I was at my worst, I just gaily thought that I was getting better and everyone was worrying unnecessarily.

An Itinerary in Light and Shadow Completed Dr Charles Stratton / Dr David Wheldon abx regime for aggressive secondary progressive MS in June 2007, after four years. Still improving with no relapses since starting. Can't run but can paint all day.
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Postby sojourner » Thu Jan 24, 2008 3:32 pm

Hi Mom,

My daughter has a bartonella dx and when she began treatment with abx she developed these tell-tale marks. With continued treatment they have resolved with no scars of any sort.

I would take pictures of these marks if you can.

There is a lyme blog (google MS/Lyme blog) where a man was MS dx'd and would get a rash (bartonella like) on his back with every flare, he is now being treated with abx.

Good Luck,
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