Thanks v.much for that
Yes, I wondered the same as the breathing trouble was not a strange feeling - just more severe and I was/am a bit floored. But then i'm never sure whether I actually believe herxing exists or whether it's just a way of psychologically justifying why symptoms are happening when one feels they shouldn't be
I'm still bad now (though not quite as bad), so it could well have just been going to happen anyway. If it is herxing then it's fair to say it was working on something that was very strongly affecting my eyes, heart and lungs - which is a bit yikes!
I didn't tolerate Avonex very well when I tried it the last time many moons ago and would prefer to try Copaxone again - I know this doesn't do exactly the same thing. Do you think it's only Avonex that helps you or do you feel it might have been the same story on any of the DMDs? I heard Avonex and Rebif help work against viruses but that Copax many not
I certainly haven't felt that that was it. I wanted to try it to see what the response would be - but I always knew 5 days worth wouldn't do much. Until I can get on to the DMDs again I won't push for a long standing dosage. I know I have the option of trying Minocycline as well if I feel that might be better - but to be honest my stomach hates ABX and i'm so convinced my problem is viral. The only thing my brain is saying is.. but if the problem is EBV/GF triggered (strong suspicions) rather than Herpes/CMV will the Valtrex affect EBV at all - do you have any idea on that?
Thanks again, and sorry to bug you with questions! x
28/07/10, 04/10/10, 16/11/10 - CCSVi Dopplers x3 ** 12/10/10 - Poland procedure. Symptoms worsened. No improvement.
13/02/12 - Wheldon ABX protocol for 1.5yrs. Fairly stable but no improvement. Unable to source alternate ABX needed.