Phil - I remember seeing something in David Wheldon's protocol (and pardon me, but I have read so much it all kind of runs together, especially late at night
) which said outcomes are uncertain if there is spinal involvement. I know Guner is only now having sensation in his lower spine after a couple of years of abx and, while that's wonderful, it does go to show how slow recovery (if there is going to be any) can be. My next MRI is planned to include the spine and I'm apprehensive about it, to be honest. Kind of 'if I don't know, then it isn't really there' mentality right now. (Also known as ostrich-mode.)
I should probably take this to private mail, but I'll tell you here, publicly, that I am hugely impressed with your fortitude. I know a lot of people would chuck it, with no certain improvements, on the basis 'this isn't working'. (I wouldn't, because I believe in the science and the rationale for the protocol, but I can certainly see how human nature requires reassurance, especially in so deadly serious a disease as MS.)
Like you, I figure the bacteria has been rampant in my body for a minimumn of thirty years and I kind of expect it will take a few years to undo what damage I still can
undo. So, I fully understand what you're saying. Vanderbilt or Stratton, can't recall which (Sarah? Marie?) is now saying some will have to be on protocol for five years. Daunting, but then again, I'd take abx every day for the rest of my life if it would end the disease. Life being a series of trade-offs, it is what it is.
My enthusiasm is for the daily, sometimes hourly, good news I keep seeing from people who had no hope months ago (myself included), who are now rising from the scooter, moving to the cane, rising from the chair, feeding themselves, shopping for themselves for the first time in ages, attending family gatherings and not tripping, falling, or failing in some way. Yet, I wish my own darned feet would stop tingling altogether and I want my 20/10 vision back and I would really appreciate it if those once in awhile pins and needles sensations would go away completely. (I've had serious improvement; don't get me wrong, but I want it all and I want it NOW. So there.) So, thank you for your measured and thoughtful response and let's both hang in there. Now I know of one person who's unsure if they've been helped. Phil, the odds are in our favor. I'll pm you.
The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi