Oh, wow! This is such a hard one!
As far as MS "therapy" for disease modification goes, that is the main frustration. There isn't that much, at least that you can obtain easily from physicians. A lot of us out here have our own suspicions on certain drugs that we feel should prove beneficial and have anecdotal results that we can (and as you note) have shared, but getting a majority of doctors on board with us has proven to be somewhat difficult.
Of course, optimistically and successfully speaking, there is trial and error until you find things that can most likely provide you with good symptomatic relief. In cooperation with your doctor, too.
Have you tried that? Other than the CRABS, which you are on Betaseron (which to me, if you aren't having major side effects with it, then that's a good choice), what other medications are you taking?
I also think several of us have found that a low fat diet (and I mean COUNT the saturated fat grams!
) has helped. And of course, mild exercise, without overdoing it. And oh, not to mention, several different vitamin supplements. Plus the ever reliable stress relief as much as possible. (Although, I don't know about you, but work, raising kids, paying bills, etc. is alone enough to stress me out!
It depends, I guess, on what specific symptoms are giving you the most trouble right now. I'm sure a lot of us would have many suggestions regarding things we have found that relieve certain symptoms (at least in our own personal experiences).
Can you be more specific about what you are experiencing?
As far as any physician experimenting too far outside the box, unfortunately, you may indeed find that particularly now with recent events that physicians may be tightening their belts a little more regarding prescribing too much "off label" for actual MS disease modification. But they should still be fairly open to helping you gain symptomatic relief via many methods.