I am a friend of Chris who has sat in the corner watching how Revimmune and how CSVI is working. I don't really know how to post but I am going to give it a try. I've watched long enough. I may never do it again I don't know. You people know much more about MS than me I am not sure I could hold down the conversation.
The level of disrespect given by some of the folks on this forum is right up there with Neurotalk. Aren't we all trying to get to the same place? I mean I have watched from the sidelines and I understand the frustration of Chris. Everything he says the Lyon disagrees with him or tries to belittle him. No wonder he strikes first!! One of the reasons I've never posted on here is I don't feel like having someone save all my posts and then using them to try to discredit everything I say. What is this Washington?
I for one, and suffering from MS for close to 15 years now, have never seen someone get better who is not in the RRMS stage - Until I met Chris. This guy has spent the better part of 2 years fund raising, and making people as aware as possible of Revimmune - to no avail! So now he is getting better but no one else is. It weighs heavy on his mind knowing the only reason Revimmune isn't already a treatment is because of money, greed, and the same disbelief exercised here. I thought this forum was about hope until Chris told me otherwise.
I would kill for Revimmune or HiC or whatever you call it. I would also kill to try CSVI.
It seems the only people who don't understand these concepts are those who don't have MS. How dare you say the things you do when you don't have the disease? My kids don't understand what it's like to have this disease anymore than you who have spouses with this disease. It's our disease, those with MS, and we are sorry we drug our families into this mess, but it is our disease. To give any advice when you don't have the disease is stupid to me. I don't give advice on Cardiac conditions because my heart is fine. Why would you give advice on MS when your nerves are fine?
Well, even though Chris doesn't give a hoot if you guys see this, I think it's worth it because even though some of you don't want hope, some of you do and I hope this provides some for you. For the first time in 15 years I have some hope and nothing any of you downers without MS on this forum could change that.
And by the way...Chris is a devout Christian, will bend over to help anyone if he can, and is honestly one of the nicest guys you will ever meet. I wish my doctors were as reliable as him. I hope my 2 boys grow up to be half as good a guy as him, because my boys dad left around year 5 of MS and Chris is actually a good role model. He hates evil and loves good.
Sorry Chris but I had to finally stick up for you. I hope you see this because even though I tell you this all the time via facebook, you can't quit now because of a few sticks in the mud. A good deal of people experienced a great deal of hope from you and hope is worth its weight in gold with this disease.