HiCy Success Stories

A board to discuss Revimmune as a potential therapy for multiple sclerosis

HiCy Success Stories

Postby Looking88 » Sat Jan 08, 2011 6:29 am

I am having trouble tracking down the long term success stories of HiCy.
Most of the HiCy participant blogs only go for a year and then stop.

Maybe people would like to use this thread to share any HiCy success stories they know about?

Thanks,
Looking88
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Postby msmything » Sat Jan 15, 2011 10:43 pm

Hi Looking,

I am about to start the Hic at Rush assuming my insurance goes thru.
It seems sort of silly for them to spend nearly 100,000 a year between drugs and hospital visits , and turn down this potential avenue for future good health. My Doc says the next option would be Gilenya for symptomatic control, there's 48 grand a year.
Anyway rant over, I agree, I don't know where people drop off to. I hope it's good place.

I ahd the good fortune to be introdiced to patient number 3 from Rush. She's now 5 years out. Feels great has no signs of disease activity, either on scan or otherwise. The last question I asked her was would she do it again, and she answered with a very hearty YES, In a heartbeat. I hope to have lunch with her this coming week, so if you have questions you would like me to ask, send 'em my way.

Best to you..
Colleen
Be kinder than necessary, for everyone you meet is fighting some kind of battle..
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Postby Algis » Sat Jan 15, 2011 11:36 pm

Feels great has no signs of disease activity, either on scan or otherwise.


May I ask: how disabled was she before the treatment?

Thank you :)
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