This Is MS Multiple Sclerosis Community: Knowledge & Support

And that's why MS is an individual's disease (like your opinion). It's all a crap shoot till you find something that works for "YOU". I am a few options short of no options. Keep rolen snake eyes. SO! Instead of argueing with people just keep it zipped. If You already know what "YOUR" MS is and how to treat "YOUR" MS than rock on. I prefer to be on the front lines until I find "MY" tretment!!

I hear ya bud. I refused to admit all those issues I had until 10 years later I couldn't move.

Everyone has that in common with this disease. Everyone was just fine even with MS at one point. Why wait until you can't move?

is there inflammation or not?? bob had said there is inflammation all the time no matter what kind your ms is.

_________________
Had ms for over 19 years now.

..

I understand this fear and have thought it myself: this treats inflammation - inflammation is a side effect and not the cause of disability - we are still screwed.

What you need to factor in is that inflammation gets pointed to as a positive result in a lot of research b/c it is measurable on an MRI like counting lesions. The "we think" part of "we think this helps b/c it decreases inflammation" is very gray. If we are going to believe that inflammation is a side effect of a more intractable disease, then why not believe that reducing inflammation is just a positive benefit to the treatment and that it's real punch is not understood? Why not believe that dramatically slowing the RRMS stage will push out or slow or even eliminate the SPMS phase? Or that this treatment will prove effective in slowing/stopping SPMS?

It is good to be realistic and even cynical, but I think you are filling in a lot of blanks with negatives and then worrying about the negative conclusion it produces. One of these unknowns is gonna swing our way sooner or later

Also I understand why people with so much invested into this treatment are defensive but discouraging debate is not the way to go.