Some good news

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Some good news

Postby chrishasms » Wed Dec 03, 2008 3:33 pm

I have just saw the boys and Carrie and one lesion right now is no big deal.

In other cases they have seen the body pop off a couple of lesions, then it stops and seems to go dormant. They never have them again.

I am not showing anything but a bit more spasticity. My strength and dexterity was better but they all agree'd I was not ready for sedimentary work.

So my best ever on drugs was LDN, and Copaxone. In 2 years I didn't have an active lesion when I used them together. So for now, the next three months because I still feel good, we will try the two of them together and check an MRI. If the MRI is good, we hold and keep doing what we are. If it's not good, let's nuke it. As it stands I am still getting better.

There is no more danger in doing it twice so if I need to I will. I still felt better on chemo than a RAB drug ever made me feel.

No bad vibes here...yet lol
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Postby Jamie » Wed Dec 03, 2008 4:04 pm

that makes me feel better mate for sure.

i guess the moral is NO ONE KNOWS.

keep on trucking pal.
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Postby Lyon » Wed Dec 03, 2008 4:25 pm

Last edited by Lyon on Sun Nov 27, 2011 12:03 pm, edited 1 time in total.
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Postby chrishasms » Wed Dec 03, 2008 5:55 pm

Actually Bob they were not all that surprised. The lesion I have Bob is itty bitty teeny weeny little thing. Compared to the stuff I used to get it still is a HUGE win.

Right now we need to see if it goes away on it's own or not. Does it get bigger in 3 months? Do I get worse? I mean right now my legs feel old as hell, and my right hand still cramps from typing, but I'm getting stronger muscle wise. Neurologically it is going slow, like it did when I got worse.

I've said it 100 times, if it was safe, I would do this once per year if I had too.
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Postby RedPenguins » Thu Dec 04, 2008 2:23 am

Chris - wonderful news indeed, though I know that the wait-and-see is a tough position to be in....but it sure is one that may be the only characteristic that people with MS all have in common, isn't it?

I hope you continue to improve every day!!

Jaime - let us know about Mel's MRI. (And hey, have her email me!!)

I will be 6 months out on January 6th, but I am really hoping that I can have my MRI before the new year begins (as it won't cost me a dime b/c I met my out of pocket max for the year).

Chris - did Dr. Kerr rx the LDN for you? I need to read more about it - as I wonder if it helps with nerve pain/ that is the only thing I am noticing right now.


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Postby mommasan » Thu Dec 04, 2008 9:20 am

That is such great news, Chris and Jamie. Just finished my round of MRI's today. I was thinking of all you guys while I was in the machine. So, I will post when I know the results. The spasticity is killing me, though.

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