Search found 323 matches
- Thu May 12, 2022 8:35 am
- Forum: General Discussion
- Topic: Sacral nerve stimulation for OAB
- Replies: 3
- Views: 2453
Re: Sacral nerve stimulation for OAB
I have now completed the Axonics sacral neuromodulation trial and am experiencing both bladder and bowel benefits. Right now the battery that provides the electrical stimulation to my sacral nerve is taped externally to my back side. I'm scheduled to have the battery surgically implanted next week. ...
- Mon May 02, 2022 11:40 am
- Forum: General Discussion
- Topic: Mobility Scooter or Electric Wheelchair
- Replies: 3
- Views: 1317
Re: Mobility Scooter or Electric Wheelchair
I love my 4-wheel scooter BuzzAround Ex, extremely useful for walking the dog, and it's good on the street.
I tried using my electric wheelchair to walk the dog, but it isn't good on uneven pavement.
I tried using my electric wheelchair to walk the dog, but it isn't good on uneven pavement.
- Mon May 02, 2022 11:30 am
- Forum: General Discussion
- Topic: Sacral nerve stimulation for OAB
- Replies: 3
- Views: 2453
Re: Sacral nerve stimulation for OAB
I am scheduled tomorrow to start neural sacral modulation therapy with the Axonics device.
Has anyone else tried this?
Botox bladder injections are losing their usefulness. I now need them every 3 months or so.
Has anyone else tried this?
Botox bladder injections are losing their usefulness. I now need them every 3 months or so.
- Mon Nov 01, 2021 4:16 pm
- Forum: General Discussion
- Topic: Sacral nerve stimulation for OAB
- Replies: 3
- Views: 2453
Re: Sacral nerve stimulation for OAB
Did Interstim work for you?
I have been getting bladder Botox injections every 4-6 months for the last 7 years. I understand Interstim can also help with bowel incontinence, also a problem for me.
I am looking for alternatives. I also take 50mg Myrbetriq twice a day.
I have been getting bladder Botox injections every 4-6 months for the last 7 years. I understand Interstim can also help with bowel incontinence, also a problem for me.
I am looking for alternatives. I also take 50mg Myrbetriq twice a day.
- Tue Mar 17, 2020 1:22 pm
- Forum: General Discussion
- Topic: Propionic Acid
- Replies: 3
- Views: 1368
Re: Propionic Acid
Propionic supplement: Biome Equal Butyrate Complete PostBiotic
- Sun Oct 06, 2019 7:13 am
- Forum: General Discussion
- Topic: SPMS How often do you see your doctor
- Replies: 7
- Views: 2759
Twice a Year
Twice a year, every 6 months. Haven't had an MRI for years.
- Mon Jun 11, 2018 10:14 am
- Forum: Drug Pipeline
- Topic: Has anyone here had BOTOX injections in the bladder ?
- Replies: 27
- Views: 24231
Re: Has anyone here had BOTOX injections in the bladder ?
With time, I seem to be getting less of a benefit with botox injections for neurogenic bladder. When I first started 5 years ago, the benefit I experienced would last about 7 months before I needed another injection. Now, 5 years later, the benefit seems to last about 4-5 months, and I'm no longer a...
- Mon Jun 11, 2018 8:42 am
- Forum: Natural Approach
- Topic: Peony Immune
- Replies: 3
- Views: 3681
Re: Peony Immune
I am passing 6 months now at 3 capsules per day of Peony Immune and plan to continue indefinitely. I am MS secondary progressive with psoriatic arthritis. Peony Immune helps significantly to reduce pain in my fingers from psoriatic arthritis. I also inject about 10mg per week of methotrexate to furt...
- Tue Feb 13, 2018 7:11 pm
- Forum: Natural Approach
- Topic: Peony Immune
- Replies: 3
- Views: 3681
Peony Immune - Pain and Swelling of Psoriatic Arthritis
I have been taking 3 capsules of Peony Immune daily now for about a month. I take one capsule every 8 hours and it has helped significantly to reduce the pain and swelling in my fingers due to psoriatic arthritis. I still have some pain and swelling, but I think I can live with it. The standard medi...
- Wed Jan 17, 2018 1:29 pm
- Forum: Biotin (Qizenday, Cerenday, MD1003)
- Topic: No more positive effect from biotin after a long period
- Replies: 7
- Views: 6095
Re: No more positive effect from biotin after a long period
I have no idea what your out-of-pocket cost is for Qizenday, but there are several high-dose biotin supplements available. You might save some money by switching to one of these.
- Sun May 14, 2017 7:55 am
- Forum: General Discussion
- Topic: Simvastatin trial starting
- Replies: 3
- Views: 1257
Re: FDA Warnings About Simvastatin Use
FDA warnings about high-dose simvastatin use (80mg) from 2011:
https://www.fda.gov/Drugs/DrugSafety/ucm256581.htm
https://www.fda.gov/Drugs/DrugSafety/ucm256581.htm
- Wed Feb 08, 2017 8:13 am
- Forum: General Discussion
- Topic: Fatigue
- Replies: 14
- Views: 2651
Re: Fatigue
I take 500mg acetyl l-carnitine 3-4 times daily on an empty stomach to help reduce physical fatigue.
- Sun Jan 22, 2017 8:44 am
- Forum: General Discussion
- Topic: workout question
- Replies: 2
- Views: 1092
Re: workout question
When this becomes a problem for me, I add calf-liver to my diet for a week or two. I tend to be border-line anemic, eating liver and onion for a period helps to clear this up. I also take b-vitamins daily, to help with this. I work out every other day and have for about 30 years. I am in my early 60...
- Sat Dec 03, 2016 11:48 am
- Forum: Medical Marijuana
- Topic: MS Hug and Indicas
- Replies: 3
- Views: 4051
MS Hug and Indicas
MS Hug related symptoms are the most unpleasant and truly frightening of any of the MS symptoms I have dealt with in my 30+ years of dealing with MS. Has anyone found indica cannabas (medical marijuana) to be of help in relieving this symptom? I have just filled a prescription for liboderm lidocaine...
- Wed Nov 30, 2016 9:26 am
- Forum: General Discussion
- Topic: Success for MS Hug pain
- Replies: 5
- Views: 2406
Re: Success for MS Hug pain
HappyPoet, Thank you for posting this. I've asked my doctor to submit a prescription so I can have these on hand in case of another attack. Truly frightening. My pharmacy is awaiting approval from my medical insurance co. before they will fill it. I'm considering paying out-of-pocket if the delay co...