Search found 15 matches

by Fighter
Sat Sep 19, 2009 9:11 pm
Forum: Sativex
Topic: Anyone have news on Sativex?
Replies: 1
Views: 6364

Anyone have news on Sativex?

I have heard that Sativex is working great for Neuropathic pain. Does anyone have information on the status of drug trials here in the US? Has anyone tried this drug? If so what was your experience? Does anyone know how I could get this drug? Thank you for any information you can provide. Fighter of...
by Fighter
Wed Oct 29, 2008 10:37 am
Forum: Campath (Lemtrada, Alemtuzumab)
Topic: Allergies and Campath, update 6 months after Campath
Replies: 30
Views: 13193

Doctors in US prescribing Campath

There is a Neurologist in TN and one in TX prescribing Campath. I received Campath off Label in TN.
by Fighter
Mon Oct 27, 2008 11:48 am
Forum: Drug Pipeline
Topic: Biogenetic hormone for MS?
Replies: 2
Views: 2888

bioal hormones

Thank you, That was a great help.
by Fighter
Mon Oct 27, 2008 11:42 am
Forum: Campath (Lemtrada, Alemtuzumab)
Topic: Allergies and Campath, update 6 months after Campath
Replies: 30
Views: 13193

Campath

Well I started a great discussion. Interferon treatments were not working for me and my MS was progressing, that is why my Doctor recommended Campath. It did not work for me, however trial results have shown that it is 84% more effective than Rebif in those with RRMS. (not as effective for SPMS). I ...
by Fighter
Mon Oct 27, 2008 11:21 am
Forum: Regimens
Topic: Estriol
Replies: 73
Views: 43712

Bioidenical hormone

Thanks for the information. I am going to speak to my neurologist about them. I think that it is the way I want to go.
Andrea
by Fighter
Fri Oct 24, 2008 7:03 pm
Forum: Regimens
Topic: Estriol
Replies: 73
Views: 43712

hormone replacement therapy and MS

Hello, I am seriously considering asking my Doctor about trying biogenetic hormone replacement therapy. Thank you for the wealth of information. Can you please tell me the following
1. Did your neurologist prescribe the hormone therapy for you?
2. Is your insurance covering the treatment?

Thank you
by Fighter
Fri Oct 24, 2008 6:25 pm
Forum: Campath (Lemtrada, Alemtuzumab)
Topic: Campath and Allergies
Replies: 0
Views: 2370

Campath and Allergies

Hello, thank you all for replying. K6isten, you have a great story as well. I will be doing a full Allergy test in about one month and will let you know the results. Right now I am so inflamed that everything would come back positive. In addition, I too have suffered from several bacterial and viral...
by Fighter
Thu Oct 23, 2008 10:50 am
Forum: Drug Pipeline
Topic: Biogenetic hormone for MS?
Replies: 2
Views: 2888

Biogenetic hormone for MS?

There has been a lot of bus lately about biogenetic hormone therapy for age, and meapause symptoms. Well has anyone heard anything about it for MS symptoms? Most women improve when their hormone change during pregnancy. Therefore, it only makes since.

Does anyone have any information?
by Fighter
Thu Oct 23, 2008 10:33 am
Forum: Campath (Lemtrada, Alemtuzumab)
Topic: Allergies and Campath, update 6 months after Campath
Replies: 30
Views: 13193

Allergies and Campath, update 6 months after Campath

Hello, I received Campath off lable in April of this year. It is very true that the reasurch trials have shown promising results for RRMS. Some studies have shown Campath to be 84% more effective than Rebif, but like any drug you need to seriously consider the drug in your perticular case carefuly a...
by Fighter
Sun Jan 13, 2008 11:55 am
Forum: General Discussion
Topic: Anyone out there with their Brainstem affected by MS?
Replies: 9
Views: 3712

Brainstem

I believe 1 cm lesion is considered small. I guess this discussion shows that neurologist do not explain to patients where their lesions are and how their symptoms relate to where the lesion is in the brain. I just wanted to know how people where doing with Brainstem involement since that is where m...
by Fighter
Thu Jan 10, 2008 6:33 pm
Forum: Campath (Lemtrada, Alemtuzumab)
Topic: Anyone's insurance paid for Campath outside of a trile?
Replies: 2
Views: 3123

Off use Campath

Yes, I live in the USA. My physician is in Nashville, TN. From what I hear there is a Physician in TX that is also prescribing Campath.
Fighter
by Fighter
Thu Jan 10, 2008 6:28 pm
Forum: Introductions
Topic: Hello from the MS Fighter
Replies: 10
Views: 3473

Hello from the MS Fighter

Hello, I am a 40 year old female and native of Atlanta, GA. My first symptoms were in 2000 when I experienced episodes of dizziness and balance problems. Throughout the years my symptoms progressed and neurologist could not diagnose me. I received probable diagnose from Lupus, dystonia... and finaly...
by Fighter
Thu Jan 10, 2008 5:58 pm
Forum: Campath (Lemtrada, Alemtuzumab)
Topic: Campax vs Tysbri
Replies: 2
Views: 4880

Campax vs Tysbri

My physician provided me two options for treatment Tysbri and Campath. One FDA approved and the other not. One covered by ins and the other possibly not. When I asked my physician which one he would choose for his family member if they were in my shoes he chose Campath. Are there any reports compair...
by Fighter
Thu Jan 10, 2008 5:41 pm
Forum: Campath (Lemtrada, Alemtuzumab)
Topic: Anyone's insurance paid for Campath outside of a trile?
Replies: 2
Views: 3123

Anyone's insurance paid for Campath outside of a trile?

My Doctor has prescribed Campath in order to stabilize my MS? I have heard of only a few insurances that have paid for the treatment since it is not FDA approved at this point. If your insurance did approve Campath how did you do it? If your insurance did not approve Campath, how much were you out o...
by Fighter
Thu Jan 10, 2008 5:21 pm
Forum: General Discussion
Topic: Anyone out there with their Brainstem affected by MS?
Replies: 9
Views: 3712

Anyone out there with their Brainstem affected by MS?

I have experienced neurological symptoms since 2001. However, I did not receive my diagnosis until Dec. 2007. My MRI showed significant damage to my Brainstem. It does explain my tachycardia and neurogenic bladder.
Has anyone experienced Brainstem damage?

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