This Is MS Multiple Sclerosis Knowledge & Support Community

Marie, I am sooooo happy you are seeing continued improvements. I just know that in the future when you can really begin to move and tighten up the improvements will be exponential. IG

Skydog, I am so happy you are improving!!!!!!! I was so happy to have someone just like me, but it sounds like the surgery has been successful on you. I have to say that I am happier that you're improving than just like me. I am changing my diet to the celiac diet, Yuck, but whatever might work. Goo...

I thought of more information and to answer the pain question. I have very low BP I was staying with a PT and she could see that I was in pain. She said I was all out of alignment and my back, left side was swollen and my neck had swollen muscles on the left side. My MRI shows most of my lesions on ...

Well I almost go it right. I meant to say if anyone wants to know more about Gluten Ataxia and this specialist google (kiaser celiac multiple sclerosis), not mononucleosis. IG

I'm back from Stamford, and ready to report. I want to thank Marie for keeping you all informed as much as possible when I was there. I couldn't ask for a better friend. I thought I could borrow a computer, but it was not possible. I also wanted to thank all of you for the kind notes. It is a big de...

Hey Mrhodes, when I have real bad neck pain I get out of bed and do a yoga move. I don't remember the name of it, but you just slowly bend down from the waist stretching every vertebra and hang so the weigh counter balances. I go up and down for a while and the longer I hang the better I feel. Then ...

Hello Daisyduck, I am a newby too. Welcome to TIMS. This is a wonderful site. I go tomorrow Stanford tomorrow and may have surgery weds. Your info has convinced me to rest. I am kind of a wild woman and I would get up and start moving asap but you have convinced me to lay low and assess. Thanks Isla...

Hi Marie, yes I can still walk but the heat makes it a lot more difficult. I have been preparing mentally to get into that awful tube. I hate that MRI tube. You would think I was use to it by now. Tomorrow I leave at 7:50pm. I will have a laptop so I'll fill you in as things happen. Bon Voyage! Isla...

Hi Skydog, I just read your post. Wow, you sound so happy. I am sooooo very excited for you. Keep posting. Your posts are so helpful. Thanks Islandgirl

Hi Daisy, Thanks for your post, you made my day! I go to Stanford the 6th of July and it was great to hear about your improvements. Islandgirl

Well, Here I am just beginning my own post 8 people down! I am overwhelmed with the love and concern you all show each other and me. Thank you so much. All the information has been very helpful in gearing me up mentally and emotionally for this decision and the guts to do it. You're all so smart and...

Karazhan - I think anybody on Rebif has to be very strong physically. I found that if I didn't drink a pitcher of water with each injection that I had all the symptoms. they seemed to course through my body. I would be feverish for a few hrs, then chilled for a few hrs. then sick for a while, and wh...

Hello NHE, yes, My MS-Neruo told me that heart problems were not associated with Re-bif so he thought it was exacerbating my own condition, but a friend of mind got mad and read Rebif's drug info on the computer (I only read the info the nurse gave me which I thought was the same). My friend said th...

Karazhan- Hello, I hope you are doing better on this drug. I wanted to tell you my story a month ago but I didn't want to discourage anyone. Some people sound like they adjust and do just fine on this drug, I didn't. My neuro found five new lesions on my newest MRI in Feb 2009 and wanted to treat it...

My mom was a heavy smoker, four of us were under weight at birth and the fifth baby died at fourteen days, diagnosis, under weight. I am the only one with MS. Island girl