Search found 63 matches
- Tue Mar 29, 2011 10:48 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Six month milestone for BooBear
- Replies: 8
- Views: 2270
- Sun Dec 19, 2010 11:17 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: What's not found by some is found by others
- Replies: 9
- Views: 2367
I had an MRV that hinted at some issues and the venogram found major issues, including an essentially closed left jug that looked okay on the MRV (blood was flowing in it, it was just coming in and recirculating back up but the movement in it showed a nice picture on MRV). I was amazed at how much t...
- Sun Dec 19, 2010 11:10 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Ms, but no CCSVI
- Replies: 4
- Views: 2086
I was treated by CC in August and they found and fixed significant issues with both juglars and my azy. Fatigue and headaches were my main complaint going in (I had no motor disabilities) and I have to say they are gone. Sure, there are times I am tired like anyone else, but I can attribute it to no...
- Fri Nov 12, 2010 10:45 am
- Forum: Drug Pipeline
- Topic: gilenia / fingolimod / FTY720
- Replies: 17
- Views: 15326
- Fri Nov 12, 2010 8:19 am
- Forum: Betaseron
- Topic: Post-injection pain?
- Replies: 5
- Views: 10489
- Thu Nov 11, 2010 7:20 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Americans treated in hospital-Albany
- Replies: 7
- Views: 2092
- Wed Nov 10, 2010 11:45 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Worth it to get a MRV??
- Replies: 10
- Views: 2947
What the MRV that I had done and what they found through a venogram were significantly different. The MRV showed some issues, just not to the extent of what was actually found. An MRV doesn't hurt, especially if your insurance will pick it up, and it could provide justification for intervention. If ...
- Fri Nov 05, 2010 8:55 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Another 3mo report
- Replies: 4
- Views: 2115
Another 3mo report
While I have things in the tracking thread it is buried in there. I just got back from my 3mo ultrasound and everything looks great and flowing in the correct direction. I was treated in Albany in mid-August (blocked left LIJ, severe stenosis in RIJ, irregularities in the azygous... almost 4 hours o...
- Tue Oct 12, 2010 9:35 am
- Forum: Drug Pipeline
- Topic: Novartis Gilenya MS Pill to Cost $48,000 a Year
- Replies: 14
- Views: 8090
- Tue Sep 28, 2010 1:11 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Up Close and Personal with CCSVI
- Replies: 13
- Views: 4133
- Wed Sep 01, 2010 11:13 am
- Forum: Betaseron
- Topic: Scared - any advice?
- Replies: 7
- Views: 10667
I have been on Betaseron for the past 15 months (dx'd April '09) and really have not had any of the side effects. I was in the same boat, the neuro was concerned due to the number of lesions, o-bands, etc. that I had and felt that I was high risk for a relapse. The only side effect, if you want to c...
- Tue Aug 17, 2010 5:53 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: CCSVI tracking project-POST PER P.1 FORMAT ONLY
- Replies: 163
- Views: 360361
- Fri Mar 26, 2010 7:22 pm
- Forum: Natural Approach
- Topic: all things vitamin D
- Replies: 1115
- Views: 261353
When I was diagnosed about a year ago my vitamin D level was 17 ng/ml and the neurologist recommended 1,000 IU a day. After some reading I upped that to 6,000 IU a day and after 6 months my level had risen to 77 ng/ml by December. I have kept that dosage and will be tested again in around two months...
- Wed Feb 10, 2010 8:52 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Is it 80% for CDMS?
- Replies: 37
- Views: 9673
- Wed Feb 10, 2010 8:46 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Buffalo Study
- Replies: 85
- Views: 22857
Cah ... I was thinking the exact same thing ... that a lot of MS people probably brought relatives with them who may have volunteered to be tested - which could elevate that number. This was one of my first thoughts as well. When I participated, my father (no MS) came along and participated as well...