Search found 14 matches

by merida
Thu Jun 03, 2010 12:07 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DR. SIMKA reply about re-stenosis
Replies: 77
Views: 24674

Based on his last comment about travel, does it make sense to stay as long as possible in Poland before returning to Canada/US?
by merida
Tue May 25, 2010 5:27 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Is IBT making me fat?
Replies: 14
Views: 3675

My husband started IBT January 1st and has experienced some very positive improvements. I have noticed that his appetite has greatly improved. He was never hungry before but now is often asking me if I'm hungry. So for sure he is eating much more. He hasn't gained weight as he exercises as much as h...
by merida
Thu May 20, 2010 6:17 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: A Phone for Poland for Canadians
Replies: 7
Views: 2115

Hi Ted,

I would love to take you up on that offer. We're scheduled for June 15, 16. We are in Toronto.

By the way, was it Marta Cyba that you dealt with at Euromedic.

Thanks.....Michelle
by merida
Wed May 19, 2010 6:08 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Katowice, June 14 & 15th
Replies: 2
Views: 1841

Hi Diana,

We're from Toronto as well and are scheduled for the 15th and 16th of June.
by merida
Mon Apr 19, 2010 9:49 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: QUICK - need info about Germany CCSVI patients!
Replies: 7
Views: 3500

Hi there, We are also booked to see Dr. Vogl for May 10th but we've decided not to go. His answers were not satisfactory and it's questionable if he will perform the procedure. There was a gentleman from England that went to see him and only received an MRV and Doppler as the Doctor declined to do a...
by merida
Sat Apr 17, 2010 5:26 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Canadians Write a letter to a politician about CCSVI today!
Replies: 36
Views: 8554

Thank you Brightspot! I appreciate it.

I'm going to tackle it this weekend. Let's hope others do as well as we can make a difference!!!
by merida
Fri Apr 16, 2010 11:42 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Canadians Write a letter to a politician about CCSVI today!
Replies: 36
Views: 8554

Thanks for escalatiing the importance of chasing down the politicians on this Brightspot. We do pay their salaries after all. I'm not sure if you have a listing of the email and post addresses for the main people we should be targeting at the Federal level. Perhaps you could (once again) cut and pas...
by merida
Thu Apr 15, 2010 8:26 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: a supposed "debate"
Replies: 45
Views: 8632

I received a response from the good Doctor. Here is my note: Wathched your performance on Alberta Live. Just wanted to clarify the facts. #1 - Regarding the gentleman with the stent issue. Dr. Zamboni has made it clear he does not approve of the use of stents. Angioplasty is another story altogether...
by merida
Fri Apr 02, 2010 8:25 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Inclined Bed Therapy
Replies: 832
Views: 244546

Hi Andrew, We inclined our bed 6" about 3 months ago and the results for my husband have been incredible. I'm a little concerned as he tends to slide down during the night so that his head isn't at the highest point of the incline. His thinking is that it doesn't make a difference but we wanted...
by merida
Sat Jan 16, 2010 8:39 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: STANFORD From Alex to those who got "The Email"
Replies: 31
Views: 9222

Thanks for your feedback Sharon and Jay. I will start a new thread with our progress.
by merida
Sat Jan 16, 2010 2:06 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: STANFORD From Alex to those who got "The Email"
Replies: 31
Views: 9222

Thanks... I will definitely pursue this and do the necessary leg work to confirm if this is a viable option. I'll post my progress with the interventional radiologist. By the way, as this is off the Stanford topic, would it be more appropriate to start a separate "Mexico" post? I'm new at ...
by merida
Sat Jan 16, 2010 1:18 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: STANFORD From Alex to those who got "The Email"
Replies: 31
Views: 9222

Hi Jay 123, We will be meeting with an interventional radiologist here, hopefully next week. I'm hesitant to do the actual procedure here even though I know they have the facilities and the specialized doctors (most having trained in the US or Europe). Once we meet with the interventional radiologis...
by merida
Sat Jan 16, 2010 7:22 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: STANFORD From Alex to those who got "The Email"
Replies: 31
Views: 9222

Hi Mark, Thanks for responding. I will definitely include it in the package. Regarding the MRV, I was having no luck getting my husband tested in Canada or the US even after calling at least 15 private clinics as well as our GP in Toronto. We spend the winter in Merida, Mexico and my husband, who ha...
by merida
Fri Jan 15, 2010 6:42 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: STANFORD From Alex to those who got "The Email"
Replies: 31
Views: 9222

I have had an MRV based on Dr. Haacke's protocol and it clearly shows a blocked jugular, should I include this in the information package or would that automatically disqualify me from the study?

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