Search found 175 matches

by carolsue
Wed Sep 08, 2004 7:52 am
Forum: General Discussion
Topic: MS, lupus, rheumatoid arthritis, cancers
Replies: 17
Views: 6715

With which type of MS have you been diagnosed? RRMS
Have you been diagnosed with lupus? No
Have you been diagnosed with rheumatoid arthritis? No
Have you ever had cancer? No
What type of cancer? N/A
by carolsue
Tue Sep 07, 2004 10:06 am
Forum: General Discussion
Topic: vertigo
Replies: 13
Views: 4516

teachk: no, I'm not on any meds for fatigue, but that's good to know. sunshine12: I'm making note of antivert in case this gets worse! thanks! Interestingly, when I told my sister about this brief vertigo bout, she said she recently had one too! She was thinking it was a new manifestation of migrain...
by carolsue
Sat Sep 04, 2004 11:46 am
Forum: General Discussion
Topic: vertigo
Replies: 13
Views: 4516

vertigo

In the middle of the night I sat up rather quickly to pull on an extra blanket and the room started spinning counterclockwise. This vertigo lasted a few minutes. This happened to me once before, a couple years ago (before my dx), and also was in the middle of the night when I got up to go to the bat...
by carolsue
Fri Sep 03, 2004 12:22 pm
Forum: Rebif
Topic: Anyone feel worse on rebif?
Replies: 23
Views: 16397

sandi55, what did your doc say about your site reactions? I, too look like a domino on rebif. I no longer am concerned about it and merely monitor the splotches to make sure they consistently fade and go away. It takes about 5-6 weeks. when I told my neuro's nurse, she scolded me for not telling her...
by carolsue
Mon Aug 30, 2004 6:50 am
Forum: General Discussion
Topic: Question about autoject
Replies: 5
Views: 2940

I've been using the Rebif autoject for 4 months. Only my first injection was manual, and this was difficult because the actual injection of fluid was very painful for me. With the autoject I still feel pain but it is short lived and I don't need to convince myself to keep plunging through the pain. ...
by carolsue
Mon Aug 23, 2004 1:57 pm
Forum: General Discussion
Topic: Recommend a neurologist?
Replies: 1
Views: 2715

Recommend a neurologist?

Are doctors' names appropriate to post in a forum? If not, perhaps responders could send me PM instead. I live in "the boonies" where my neuro is certainly adequate but not "cutting-edge." For peace of mind, I'd like to seek alternate opinions about my MS and my therapy. I have n...
by carolsue
Wed Aug 11, 2004 3:13 pm
Forum: Introductions
Topic: new post
Replies: 5
Views: 2894

pattyr, that's a million dollar question, and everyone has to come up with their own way to cope. what works for me is to first focus on the things I CAN do, not on the things I can't. and I don't always put up the front of a happy face for those I'm closest to. denying it to them makes it too easy ...
by carolsue
Wed Jul 28, 2004 2:51 pm
Forum: General Discussion
Topic: MRI frequency
Replies: 6
Views: 3262

thanks, I will, but I'm asking here because I'm not confident that my neuro is up to date on MS. I don't have many choices in neuros where I live, so these forums (fora?) are a very important source of info for me.
by carolsue
Tue Jul 27, 2004 1:25 pm
Forum: General Discussion
Topic: MRI frequency
Replies: 6
Views: 3262

MRI frequency

Are there any guidelines or recommendations on how often we RRMS patients on beta-interferon therapy should get MRIs? Anyone have difficulty with getting insurance to pay for them? My symptoms and MRI in April led to a straightforward diagnosis. No symptoms so far since starting rebif in May. Should...
by carolsue
Mon Jul 26, 2004 8:17 am
Forum: Introductions
Topic: New to all this
Replies: 3
Views: 1951

Hi Steve, I'm also new to this (diagnosed in april at age 40, started on rebif in may, found this site a week or two ago). I found it was real easy at first to max out on info, but have found these forums to be very useful. Of course the psych part is the hardest...you're bound to be depressed, scar...

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