Pesho wrote:32 000$ in Israel? If this is the case, it could be a lot cheaper in other countries. Just I'm not sure if it only repairs the damage or it stops the disease?
czapski wrote:Maybe little off-topic, but I love You guys, this forum has given me hope and helped me live last 1,5 years (and coincidence or not - progression stopped). Similarly to You I have rather "exposed" job and live in "official denial" of disease (and I am 31 years old too
shucks wrote:Please keep us posted. I guess what dr Burt put in his last paper about inflammation being the key is really the key to this crazy disease.
shucks wrote:A big part if the theory behind hsct as a treatment is to stop the underlying inflammatory disease activity to ward off the next two stages of the disease. Along with having an immune naive system to replace the old malfuntioning immune system.
orry to jump in, guys, but I am in contact with Dr Slavin just as Asher does. You are both right, shucks and Gogo. Dr Slavin told me that he only recommends HSCT when you have active lesions, so there is an active autoimmunity, but he does not recommend it when you do not have it. Then, something else is wreaking havoc, a neurodegenerative process is taking place. This is the case mostly with SP an PP, when he recommends MSC. As reaching progressive stage takes sometimes even twenty years, it will be interesting to see the effects of HSCT that time around. It is also an interesting thing, what is the relationship between autoimmunity and the neurodegenerative process as most of the SP and PP patienst have no active lesions.
It is also an interesting thing that EAE, the mice disease that they base MS on, can be cured by drugs, but none of the drugs developped can cure MS.
So I'm back to square one. I let no grass grow under my feet and I have been to see Prof. Slavin in Tel-Aviv Israel two weeks ago. He is a remarkable person, took his time, was very thorough and very candid. Bottom line, you may have already guessed, the next 10 days I'll be on my way to Tel-Aviv for a BMA, 3 months after which I will go to Switzerland to have the cultured MSC's pumped into my failing body. If this works and should I experience even modest improvement, I'm willing to repeat this procedure once every 12-18 months (provided the Prof. is willing to adopt such a strategy).
So a somewhat somber post spiced with hope, yours,
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