packo wrote:Hello to all off you,
For those who do not know (it has been a while since my last post), I am the guy that did the non-myeloablative HSCT at Hadassah, Jerusalem, in late 2006-early 2007. Back then, Prof. Slavin was still at Hadassah, and CTCI was still in construction. Before the HSCT I was SPMS with EDSS 6-6.5 (let’s say 6.25, sometimes was able to walk only few meters with crutches). My latest MRI prior to HSCT did not show signs of any new lesions, but Prof. Slavin, Prof. Dimitrios Karussis (professor in neurology at Hadassah) and neurologist in my native country concluded that the absence of lesions might be the result of Mitoxantrone treatment. So Prof. Slavin decided to go with the HSCT despite the absence of new lesions – Hadassah is not a private clinic, so the criteria for such a treatment back then were more rigorous. Here is my typical working day:
6.20 AM – I get up
6.30 – 7.30 – cycling in my room
7.30 – 8.30 – upper body exercises, including weightlifting, 20 x 60 push-ups, boxing with 3 kg in each hand
8.30 – 9.20 – lower body exercises
9.45 AM – 5 PM –working, I work at home
5.30 -6 PM- weightlifting
6 – 6.30 rest
7 – 9 PM working
9.15 – 10.15 PM walking (I walk with crutches when being outside, but my left leg is 3 cm shorter and still 35% weaker due to the nasty fracture 5 years ago, so that combined with my previous balance problems means crutches are my friends for now)
One final note – this year during holidays I managed to swim 2 kilometers without stopping, and prior to that I spent 2 hours in a gym with weights
Ever since the HSCT I am totally drug free, no signs of new lesions, thank you Prof. Slavin for giving me my life back!
p.s. HUD, Asher – everything will end up well, I am sure, never, never give up!
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