Great idea, Shucks to start a running list of people doing HSCT for MS. I was also considering to start some form of MS-treated database. But I have also come to realize that there are a large percentage of people in the MS community that had HSCT and are also (understadably) very priviate people. So I think it unlikely that we can catch & record all people for posterity sake. Another good reason to have the findings of the clinical trials published (which is overwhelmingly positive).
Just FYI. . . . both the non-myeloablative (sometimes referred to as lymphoablative) and the myeloablative (which also ablates lymphocytes; the objective of the treatment) have so far shown substantially similar (statistically equal and both very good) clinical outcomes.
For me. . . I had the myeloablative treatment while I was SPMS. Now at 20 months post-transplantation I can definitively state without question that I continue to be 100% MS progression-free since my transplantation. And so far I have also experienced a 40% improvement (reduction) of my pre-transplantation EDSS score. I would bet that if I would have had the non-myeloablative procedure I likely would have had the same or similar result. Although they somewhat differ in administration, I have confidence in both protocols to be very effective in terms of clinical benefit.
As a side note. . . . I do keep an updated list of facilities that I am aware of around the world that will perform HSCT for MS'ers. The good news is that I will soon add another facility listing of (what appears to be an excellent) hospital facility in India that will perform HSCT for the extremely reasonable price of $40K (they just finished treating their first MS patient on top of other cancer patients receiving the same myeloablative HSCT protocol). I hope to post this info within the next several weeks so that this treatment option will quickly become available to others.
Treatment location info that I keep updated. . . . http://themscure.blogspot.com/2011/06/g ... -have.html