CureOrBust wrote:when are you scheduled to start treatment?
CaroleK wrote:Great to hear! I'm also in Dr. Burt's study. I failed on 3 DMDs. Finished mobilization and head back to Chicago in early September for the transplant. HSCT, thankfully, is getting more press lately and, for those of us with aggressive, non-responsive MS, it is by far the best option out there! Don't worry...you won't get any bashing from me!!
sorry, I meant to ask CaroleK, from memory she is in the trial and would therefore be stuck to their schedule, and when I read the trial info it had the results not being available for a number of years. yet you have already been treated.reallyreally wrote:CureOrBust-I had my treatment last October.
If I understand this right, the doctor you wanted to do it would of recommended 1yr of copaxane, while Dr Burt has no long term medications after the treatment?reallyreally wrote:I would have had the treatment done by my local Dr at UTSW (University of Texas at SW). But, insurance wouldn't cover it. (He is a research Dr!!!) This is his opinion!!!!! He thinks 4 days of high dose chemo should be first line treatment. (And they do it there, if you ask). Followed by 1 yr of copaxene. I am quoting him. I know a lot of people here do not agree with this treatment. But, I would absolutely do it again. I feel a great weight has been.
If they do not do the "stem cell" treatment after the chemo, that would tell me the medications they are using do not kill off the bone marrow; as also from my understanding, the purpose for stem cells in HSCT is to reinstate the bone marrow, to regenerate the immune system. Do you know if they are using HiCy at UT?it sounds very similar with the copaxane.reallyreally wrote:Yes, the treatment at UT is a little different than Burts. They don't, for example. do the stem cell aspect of it.
I would guess a lot of the qualifying criteria was there at Burts because you were entering a trial.reallyreally wrote:But, there is not a lot of the qualifying criteria for them to perform the procedure.
I am interested in knowing of HSCT options from countries with a high Human Development Index, and by HSCT, I mean:reallyreally wrote:Again, I know it is not for everyone
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