I am not posting this to start a debate on whether or not people believe this is "the right" thing to do. I am simply stating my results. I researched, discussed and agonized over this decision for a year. I did not jump in blindly, it was a very thought out, personal decision. Trust me. I know the might, should, would, and all; so please don't try and "inform" (or bash) me.
Last October, I had HSCT stem cell treatment at Northwestern as part of the MIST clinical trial under Dr. Burt. I took copaxene, ate a very healthy diet, took tons of supplements and exercised (walk 2 miles, out in the sun) everyday. And still had new lesions, on my spine and brain. I spent 16 days in the hospital; about 5 weeks off and on in Chicago total. My insurance covered the procedure.
My 6 month follow results: The newest lesion on my spine (enhancing 6 months ago) is no longer detectable, and I have no new lesions. I have gone from a 4 EDSS to a 1 EDSS. Some problems that I didn't know I had have improved, like my vision and bladder. My balance is better, my cognitive ability is better, my hand/eye coordination has improved. And, that awful dark, brain fog has lifted. I still have the numbness, that may or may not get better. I am not on MS medication, but continue with everything I was doing before (walking, supplements). I am hopeful that each year I will improve and that I have put my MS in remission. I will go back in 6 months, then again once a year for the next few years. They have told me that Burt should be publishing his paper/results soon. Hopefully, opening the door to others that might want to try this option.