The encyclopedia needs updating with allof the medicalwords,jargon and abbreviations.
A how to get diagnosed and the MacDonald Scale and Diability scales would be very helpful.
Also theories section- AutoImmune vs CCSVI explained.
It took me a long time....too long to undestand the disease and most of it was not from here and all of that should be here
Cat (Catherine Somerville on FB)
My 35 yo daughter is newly dx 8/19/10 (had 12 symptoms)
Dx with Type A CCSVI- 1 IJV & double "candy wrapper" appearance of her Azygos
Venoplasty done Sept 21, 2010
Doing extremely well-