One of the stories that a very lovely woman who has had MS for over 20 years really moved me into a different direction between the time I was "officially" diagnosed and now, over 7 years later.
We feel like the ground under our feet is shaking with symptoms and many looks or statements that maybe our "illness" is all in our Head. (Really? Come on....)
We feel like no one believes us, and maybe we have succumbed to hypercondria (I am sure no one has felt that or heard that before, yup.)
Then, I felt RELIEVED when after almost a year of testing and searching for answers to find out, wait for it.......wait.....IT WAS IN MY HEAD!!! Couldn't resist, had to make you smile.
Flash Forward, years and years later....I have to remind myself that NOT EVERYTHING IS MS! Oh geez. Some of it is because of MS, or I picked up a virus/bug/UTI, etc. that made my MS MAD (my MS has feelings). Just like when I do something dumb like go outside here in HOTLANTA (Atlanta) when with 80% humidity and heat in the 90's I don't hydrate enough and keep a hat on and don't over do, I can cause a "Pseudo" Exacerbation. I love that term. It's fancy for FAKE...no, it's not, but remove yourself from the situation get hydrated, cooler, I can make myself feel better.
I can catch a cold and take longer to get better. I stay away from crowds when the Flu is at Code Orange alert (whatever the 911 or flu is). I enjoy making my husband get a flu shot just for once he can get a damn shot...hee hee...but it is to protect me and my MS I say (He still believes in that one).
The meds over the years, the trials and tribulations of life and genetics, my lack of discipline in passing up a freshly baked brownie without insisting on icecream making my cholesterol crazy....Those things aren't my MS, and have their consequences.
So, MS Pals, we plan. We must. In advance of a new Drug, or a trip, or anything that we need to be mindful to be careful. But, let's not forget, if things get out of whack with our bodies, we can go down the checklist in our minds and remember that perhaps it isn't MS, or perhaps it is the new Medication or Not. We need to learn that perhaps we need help sorting through what is going on, and maybe, just maybe it isn't what we thought it was and we can make some adjustment in diet, timing, other medications, rest, planning or get over something else that's going on. But, let's ask the right experts. The Local ER unless there is an MS Center there, have absolutely no idea most of the time of what to do about me because I have MS (Honest I have been told that) let alone the real deal on the new Med.
Like my WISE "older" dear friend said to me, why are you listening to your Hygenist's Daughter's Veternarian and not calling and talking to the direct source for the answer (my doctor)? Yep....she had me at the word WHY...
Coz, well, yup, I have to say it....NOT EVERYTHING is....
RRMS diagnosed 2006
Tecfidera Started April 2013