Sweetyhide wrote:My 3rd injection has been rescheduled to Oct 15th, due to storm.
I also called my coordinator and she had them fax info that I was on Placebo before.
I honestly thought I was, but questioned it when I looked at the past year OVERALL. I did really well, compareable to past years.
Coordinator just called. My vaccine is on schedule and has been made so tomorrow is #3!
TWG wrote:av8rgirl; maybe that's why they cannot find MRTC in you!!
I found out today I was on the real tovaxin as well. I was convinced I was on the placebo as I had a nasty relapse between shots 4 and 5. My walking abilities have also diminished.
It was decided to wait until my neurologist can review my MRI's before we consider my next move. As a laymen, maybe it's because I've had MS for 8yrs. Earlier studies were for people that had MS for shorter periods of time, just a hunch.
I'll check back in when my course of action is decided.
Lyon wrote:I guess I wouldn't expect them to make copies of the images but it seems they could enlighten you to noticed trends. You've GOT to have the most user "unfriendly" coordinator in the US!av8rgirl wrote: So, I won't be getting any MRI information.
TWG wrote:av8rgirl: I tested positive for MRTC's the first time, bummer, considering I was on the real juice. Still waiting to see what my neurologist recommends. Considering your case, I might have had an epitode <SP> shift !?!? I wonder if Opexa would release that info?
Lyon wrote:As long as there can be nothing but gross speculation at this point, I have to wonder if there might not be an abundance of different MS epitope relationships, but that they vary greatly in importance and that maybe, just maybe by fate or design, the original treatments were aimed at the most important.
Considering treatment dose is still 45-50 million MAYBE the additional strains being put to use since then don't serve much more purpose than to "water down" what had been the optimum dose in previous formulations.
Users browsing this forum: No registered users