under investigation

This is the place to ask questions if you have symptoms that suggest MS, but aren't yet diagnosed.

under investigation

Postby ssamm » Thu Aug 01, 2013 11:40 am

Ok, so about a year ago i started to get permanant pins & needles in my left hand, i didnt think much of it.
About 3 months after it started i then started to loose my grip & couldnt feel anything. Then my coordination went. I had no strenght in that arm. When i looked in the mirror my whole body was lopsided, left shoulder compleatly dropped.
To add to that i got double vision, & blured vision. My feet had some numbness on and off.
This all lasted 2-3 months.
Even when it stopped, i still have the pins & needles, that never went away.
3 weeks ago things started to get worse. Im loosing grip in my hand again. With slight dizzyness. My right hand has started to get the pins and needles now. My fear is that in the next few weeks my coorditation is going to go again.
To add to my symptoms im allways tierd, the longer i stand the dizzier i get, im ok when sitting down.
If im walking i fall easy & allways end up walking into those im walking with. When im in the shower i temd to sway quite abit, thankfully we have a rail in the shower.
Im going to start keeping a diary of what happens ri me as its probably best idea.
Im seeing a nuerologist, my last mri scan my spine had white blotches all down it, im due another in november i believe.
I just want to know if this is what others got. Its hard to talk to family about it as they dont seem to understand.
Oh one more question. When i bend my head down my whole body kinda vibrates, its hard to explain, but that happened when i first got the worst of my symptoms, now been doing it a coulple weeks, anyone else had this?
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Joined: Thu Aug 01, 2013 11:35 am


Re: under investigation

Postby aredmosquito » Thu Aug 01, 2013 2:00 pm

You almost exactly describe what I went through the past three years off and on, except I had no lopsided body, only face. I had vertigo, terrible loss of walking ability, and intense headache that prompted my DX.

The vibration sensation is one of my MS symptoms too. It's called L'hermitte's sign.

Good luck to you, I hope you get answers!
Diagnosed with RRMS March 2013.
Rebif May 2013 - September 2014.
Gilenya since November 2014.
Getting to Know You...
Posts: 19
Joined: Sun Mar 17, 2013 9:13 am
Location: Southeast WI, USA

Re: under investigation

Postby ssamm » Fri Aug 02, 2013 2:50 am

Thank you so much, least i now know what its called, doctors look at me funny when i say i vibrate!
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Joined: Thu Aug 01, 2013 11:35 am

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