Undiagnosed

This is the place to ask questions if you have symptoms that suggest MS, but aren't yet diagnosed.

Undiagnosed

Postby RyanYum » Thu Aug 15, 2013 6:02 pm

I fairly sure i have this disease

It started when i feel from a pull up bar at my gfs house 4 years ago and i had tingling sensations down into my feet and didn't feel the need to eat. Throughout the years i noticed i felt less intelligent and could barely hold conversations with other people. Not only that but my lower extremities had reduced sensitivity and my muscles would be continually stiff to the point where i tore my adductor, lats, and rotator cuff all in one year from running track. Then nearly a 9 months ago I i was swimming and had tingling sensations throughout my entire body and then what felt like fire ran down the length of my body into my face. I could barely walk and was rushed to the hospital where they did a shit ton of tests but found nothing wrong. Now im having tiny relapses every 4-6 weeks where it seems to be a burning sensation from my stomache to my throat and during this time i feel really sick like as if i was infected. Also while these episodes happen my gait gets messed up and i can barely speak, at one point i couldn't even read let alone process thought. There are so many symptoms it's really hard to describe them all.

symptoms that stay with me
sensitivity to touch
cognitive problems
numbness in groin lower extremities
bad sense of smell
bad sense of taste
reduced stamina
inability to digest food well
muscle stiffness
symptoms that come and go prevelant during relapses
muscle spasms
gait problems
left eye pain
white lines
blurred vision
tingling
stomach pain
inability to read
inability to think/ process information (i feel like a vegetable, i sit there staring at a wall when this happens)
lack of strength
emotional problems(crying for no reason)

do you think this is ms, it sounds like it is to me. If it is ms what kind do i have and is it treatable so far my symptoms seem like progressive remissive multiple sclerosis
I'm also not overweight im actually really fit i ran track collegiately before this think hit me like a ton of bricks. I also eat a paleo style diet
RyanYum
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Re: Undiagnosed

Postby jimmylegs » Thu Aug 15, 2013 6:34 pm

hi ryan and welcome :)

here are some links to this year's crop, to date, of possibly relevant discussion topics:

*****

Sun Jul 28, 2013
hi and welcome :) you could get a serum magnesium test to rule out athletic nutrient depletion as a source of your spasms. it's a major blind spot in conventional health care. your serum levels need to be high high normal to avoid deficiency. research has established that deficiency occurs inside the normal range... undiagnosed-f54/topic22740.html#p213263

Fri Jul 19, 2013
I have helped others deal with athletic nutrient depletion... the docs aren't trained to see the electrolyte problems associated with athletic nutrient depletion.
I used to have SERIOUS cognitive deficits and muscular issues as well. once I started looking into it, I had multiple nutrient depletion issues. i fixed them and got better. ... undiagnosed-f54/topic22679.html#p212824

Wed May 15, 2013
hi goss my antennae fired when you mentioned ballet. I would have a serious look at athletic nutrient depletion. ... friends-and-family-f17/topic22255.html#p209562

Sun Mar 10, 2013
i have often passed on research to members here regarding athlete nutrient depletion. a while back i gave the same info to a thin active person with amenohrrea, then counselled her through getting all the related bloodwork done, and starting a corrective nutrient-dense diet plus therapeutic supplement regimen. her nutrient levels got higher, and she got better... introductions-f20/topic21854.html#p206052

*****

I can help advise on tests and how to evaluate results if you're interested in leaning about and/or pursuing a nutrition science approach. worst case scenario, you rule out depletion as a factor. but at a minimum I would think you should be able to expect some gains from addressing any suboptimal nutrient levels.
my approach: no meds so far - just nutrient-dense anti-inflammatory whole foods, and supplements where needed
info: www.whfoods.com, www.nutritiondata.com
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Re: Undiagnosed

Postby RyanYum » Thu Aug 15, 2013 7:25 pm

I follow the wahls diet and eat fermented foods along with a pund of kidney, heart, thymus, and liver ground at least once a week. Also including bone broth, i also supplement b1, folate, b12, vit d, magnesium, zinc and copper.
RyanYum
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Re: Undiagnosed

Postby jimmylegs » Thu Aug 15, 2013 7:57 pm

hey :)

if you can provide more specific details re your interpretation of the wahls diet, I can look for any potential gaps or conflicts.

how much per pill and what form of the various supplements are you taking? do you have a routine in terms of which ones you take at what time of day?

hmm I just went through the organ meats looking at zinc status just as a preliminary.. a pound of ground organ meats so 4 servings, looks like only 2-5mgs of zinc per serving (and the 5mgs would be if it was all liver) which surprises me.
my approach: no meds so far - just nutrient-dense anti-inflammatory whole foods, and supplements where needed
info: www.whfoods.com, www.nutritiondata.com
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Re: Undiagnosed

Postby RyanYum » Thu Aug 15, 2013 8:28 pm

I eat the 9 servings of vegetables, 1lb of meat(I swap meats weekly, pork, salmon, beef, lamb) half a cup of blueberries, some starchy vegetables including carrots, parsnips, and beets. Most of this is sauteed in oil and i'll have bone broth before bed along with some fermented kefir and my vitamins.

I'm taking 400mcg of folate as metafolin, 22mg zinc picolinate, iodine 225mcg, vitamin k1-k2-mk7 2200mcg, vitamin d 8,000 IU, magnesium luiquid concentrate 800 mg's, vitamin b1 100mg, methylcobalmin b12 5000mcgs. Also i'd like to note that in conversation i have trouble finding words and can sometimes go completely blank, same thing with reading, I just have no focus.
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Re: Undiagnosed

Postby jimmylegs » Thu Aug 15, 2013 8:34 pm

which veg do you favour most in the 9 servings, iima? a pound of meat daily, wow
also, any extra detail you can add on the amounts and forms of the supplements could be telling. taking them all at once could be part of the problem, depending how much you are taking of each thing.
my approach: no meds so far - just nutrient-dense anti-inflammatory whole foods, and supplements where needed
info: www.whfoods.com, www.nutritiondata.com
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Re: Undiagnosed

Postby RyanYum » Thu Aug 15, 2013 8:38 pm

it's not as much as it sounds lol but i tend to favor chard and collards along with spinach, cauliflower is also included i think i eat about a cup a day at least. Also srry i forget my symptom list is so long, every time i hit something i feel like i'm being shocked in that spot.

so to recap
i've had an mri of my brain and whole spine
as well as an eeg

but they refuse to do a spinal tap

when i came in to the hospital i could barely walk down to the block do to extreme fatigue, doesn't this scream ms or am i delusional.
RyanYum
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Re: Undiagnosed

Postby jimmylegs » Fri Aug 16, 2013 4:33 am

chard, spinach, excellent! collards and cauli don't end up on my radar quite so often for nutrient density, but still are good ones. what do you get in the way of nuts seeds and oils?

re tests, I assume the docs have not tested the various nutrient levels commonly low in ms? how long have you been following your current regimen?

re your supplement dtls, can you send a link to your magnesium product info? are you taking it all at the same time as the 8000 iu vit d3? that could be trouble, with links to many of the symptoms on your list.

you might need to double up on the zinc, but a handful of serum nutrient tests would be a really wise step. tons of specifics provided at the 'key targets' post, url below
my approach: no meds so far - just nutrient-dense anti-inflammatory whole foods, and supplements where needed
info: www.whfoods.com, www.nutritiondata.com
User avatar
jimmylegs
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Posts: 8944
Joined: Sat Mar 11, 2006 4:00 pm


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