Neuro says I'm fine, but didn't do MRIs with contrast?

This is the place to ask questions if you have symptoms that suggest MS, but aren't yet diagnosed.

Neuro says I'm fine, but didn't do MRIs with contrast?

Postby laneb » Wed Oct 23, 2013 7:09 am

For a few months now, I have been having some stiffness in the whole left side of my body. I also notice when exercising that that side of my body becomes fatigued much more easily than the right side. I have seen a neurologist, and we have done extensive panels of bloodwork, as well as an EMG, and MRIs of cervical/thoracic spine W/O contrast only. I also have a brain MRI w/o contrast from approximately 10-11 months ago. She is confident that I do not have ALS, and I believe her based on the EMG findings. She is also confident, however, that I do not have MS. I'm not sure if I believe this one because I feel that the MRI's should have also been done with contrast. I'm not sure if I need another brain MRI as well, but I was wondering if anyone can offer their thoughts as to whether my examination has been complete enough to rule out MS? Or should I go back and ask for additional testing?
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Re: Neuro says I'm fine, but didn't do MRIs with contrast?

Postby lyndacarol » Wed Oct 23, 2013 9:50 am

You have had much testing – bloodwork, EMG, MRIs, etc. Compare your exam experience with these recommendations from the University of Chicago: http://peripheralneuropathycenter.uchic ... #bloodtest

Especially important is this section on blood tests:

Blood tests

Blood tests are commonly employed to check for vitamin deficiencies, toxic elements and evidence of an abnormal immune response.
Depending on your individual situation, your doctor may request certain laboratory tests to identify potentially treatable causes for neuropathy. These include tests for:

Vitamin B12 and folate levels (Jimmylegs, here at TIMS, recommends magnesium, zinc, and copper also.)
Thyroid, liver and kidney functions – I think you have said that the thyroid was checked.
Vasculitis evaluation
Oral glucose tolerance test (I suggest a "fasting blood insulin test" also.)
Antibodies to nerve components (e.g., anti-MAG antibody)
Antibodies related to celiac disease (I think this is VERY important, as well as a mannitol-lactulose test for Intestinal Permeability.)
Lyme disease – I believe you have had this investigated, too.
Hepatitis C and B

Discuss areas not already tested with your doctor.
My hypothesis: excess insulin (hyperinsulinemia) plays a major role in MS, as developed in my initial post: "Insulin – Could This Be the Key?"
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