what's next?

This is the place to ask questions if you have symptoms that suggest MS, but aren't yet diagnosed.

what's next?

Postby ruthiecrue » Mon Mar 10, 2014 3:40 pm

I have had these weird symptoms for almost a year now. It started out with these random sharp shooting pains that woukd randomly happen in random parts of my body. I started getting more symptoms as time went on. Now i have all the ms symptoms except for numbness. I see a neurologist regularly. Ive had multiple brain mris which all came back clear. Ive also had a c-spine mri which came back clear. Ive had a ton of blood work which came back great. Ive had an emg and a nerve conduct test and they came back normal. Ive been diagnosed with optic neuritis by my opthalmologist. My neuro sent me for an oct eye test and a lumbar puncture which i havent gotten the results back yet. My question is what if these last 2 tests come back normal than what is next?
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Re: what's next?

Postby CaliReader » Mon Mar 10, 2014 5:51 pm

Hi,

Sorry to hear you are not feeling well.

If your tests come back negative, you can still manage symptoms with your primary care doctor. I hope you are doing that anyway, since MS treatments don't help with symptoms, they only supposedly slow down the disease.

If your tests come back negative, either you don't have MS which is good news, or it doesn't show up yet. Earlier disease sometimes doesn't show up, then later it can. Also some mri machines are stronger and some are weaker, so if you were tested on a 1.5 machine you can go find a 3 machine. (3 is stronger. )

Unfortunately, now that you are walking down the might be ms road, uncertainty is the experience. That will be true whether your tests come back positive or negative. I really hope you don't have ms and that your symptoms are caused by something much milder. But, I know what it is like to know something is wrong and want a diagnosis because of not being believed. Not fun.

I wish you the best, and I'm sorry you are in this situation.
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