Diagnostic testing question

This is the place to ask questions if you have symptoms that suggest MS, but aren't yet diagnosed.

Diagnostic testing question

Postby mcames12 » Wed Jun 04, 2014 4:38 pm

Is it typical for a neuro to repeat a cervical spine MRI but not the brain? What would be the advantage to doing that?

Some background -- I had negative brain and cervical spine MRI's on 3T last year, but symptoms of numbness/tingling/burning persist, particularly on left side. Also have weird throat numbness/tongue tingling at times and have had gluey eyes at times.

The cervical spine MRI showed a herniated disc at the C3 -- otherwise normal.

I"m planning to try to get him on the phone tomorrow, but would love to hear from some of you, too.

Thanks!

M
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Re: Diagnostic testing question

Postby jimmylegs » Wed Jun 04, 2014 5:24 pm

hi :) from my non-pro perspective it seems like the doc might want another look at the c3 herniation.

fyi here are some links from my fave site for spine info

disc anatomy
http://www.chirogeek.com/Anatomy%20Page ... atomy.html

on disc nutrition
http://www.chirogeek.com/Anatomy%20Page ... l_endplate

degenerative disc disease
http://www.chirogeek.com/DDD%20Page/000 ... _Aging.htm

herniation
http://www.chirogeek.com/Herniation/Her ... -page.html

MRI
http://www.chirogeek.com/MRI%20READING/MRI-reading.html
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Re: Diagnostic testing question

Postby mcames12 » Thu Jun 05, 2014 9:48 am

Thank you, this info is very helpful!
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Re: Diagnostic testing question

Postby jimmylegs » Thu Jun 05, 2014 10:00 am

no problem :D
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Re: Diagnostic testing question

Postby Wondering » Fri Jun 06, 2014 11:21 am

Hi M

Did you call the neuro? Hope you got some answers

Hugs

C.
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Re: Diagnostic testing question

Postby mcames12 » Mon Jun 15, 2015 12:06 pm

Hi, all,

I've been very quiet on this forum, as I was taking a break in figuring out my symptoms. You've all been so kind and helpful -- I really appreciate the support here.

So now I'm back -- 2 brain MRI, 2 cervical spine MRI's, 3 neurologists and 2 GP's later. After going nowhere with my neurologist at Yale, who insisted all of my symptoms (which have now progressed from just tingling to tremors in arms and down spine, even eye pain, as well as bladder issues) were probably result of pinched nerve in my neck. The cervical spine MRI ruled that out.

So I switched GP's and begged for a repeat brain MRI. Just had that, again on the 3T, and it was clear. Problem is, I'm not sure my GP wrote "rule out MS" on the order, because I noticed in the report I read that it said "Clinical diagnosis -- possible Lyme." He wants to do one more Lyme test to rule out Lyme (but I don't think I have that). Anyway, my GP claims that he had the head of MRI look over my scan and he saw nothing in the white matter or orbits to suggest MS.

My fear is that the scan wasn't done properly -- or wasn't read properly -- and that it missed something in the optic nerve or elsewhere. I do believe I have retrobulbar optic neuritis. It isn't normal to have eye pain that last for months (it was relieved a bit by steroids, but only temporarily). My ophthalmologist can never see anything on the optic nerve when he looks in my eye, which is why he suggested the brain scan to look behind the eye. I've had every other possible test under the sun -- all negative. I'm sick about the possibility that the scan may have been a waste of time.

I don't know what to do anymore. I can't see an MS specialist at Yale because you have to be diagnosed in order to get in there. I'm terrified I'm going to wake up with serious vision issues one of these days.

I guess I know in my heart I need to find an MS center somewhere else in my state that sees undiagnosed patients and bring all my records and scans there and start over. I'm just so fed up with this process.

Thanks for letting me vent.
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Re: Diagnostic testing question

Postby lyndacarol » Mon Jun 15, 2015 3:28 pm

mcames12 wrote:I've been very quiet on this forum, as I was taking a break in figuring out my symptoms. You've all been so kind and helpful -- I really appreciate the support here.

So now I'm back -- 2 brain MRI, 2 cervical spine MRI's, 3 neurologists and 2 GP's later. After going nowhere with my neurologist at Yale, who insisted all of my symptoms (which have now progressed from just tingling to tremors in arms and down spine, even eye pain, as well as bladder issues) were probably result of pinched nerve in my neck. The cervical spine MRI ruled that out.

So I switched GP's and begged for a repeat brain MRI. Just had that, again on the 3T, and it was clear. Problem is, I'm not sure my GP wrote "rule out MS" on the order, because I noticed in the report I read that it said "Clinical diagnosis -- possible Lyme." He wants to do one more Lyme test to rule out Lyme (but I don't think I have that). Anyway, my GP claims that he had the head of MRI look over my scan and he saw nothing in the white matter or orbits to suggest MS.

My fear is that the scan wasn't done properly -- or wasn't read properly -- and that it missed something in the optic nerve or elsewhere. I do believe I have retrobulbar optic neuritis. It isn't normal to have eye pain that last for months (it was relieved a bit by steroids, but only temporarily). My ophthalmologist can never see anything on the optic nerve when he looks in my eye, which is why he suggested the brain scan to look behind the eye. I've had every other possible test under the sun -- all negative. I'm sick about the possibility that the scan may have been a waste of time.

I don't know what to do anymore. I can't see an MS specialist at Yale because you have to be diagnosed in order to get in there. I'm terrified I'm going to wake up with serious vision issues one of these days.

I guess I know in my heart I need to find an MS center somewhere else in my state that sees undiagnosed patients and bring all my records and scans there and start over. I'm just so fed up with this process.

Thanks for letting me vent.
Hi, Michele (mcames12),

We understand venting – we've all been there.

You have said that your symptoms started shortly after your baby was born. Pregnancy and nursing are great drain on vitamin B12 stores. (As I have said, swallowing difficulties, a.k.a. dysphasia, can also be due to a deficiency, among other conditions.) Has a possible B12 deficiency been investigated?

Is it possible to see Lawrence Solomon, M.D., hematologist with Yale Medical School?
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