Symptoms are pointing to a possible diagnosis

This is the place to ask questions if you have symptoms that suggest MS, but aren't yet diagnosed.

Symptoms are pointing to a possible diagnosis

Postby clew85 » Wed Jul 02, 2014 9:09 am

This is my first post and would love any feedback! I just had a baby 4 months ago and I have heard that MS symptoms can really get going postpartum. This could be the case with me.

I'll start with my first symptom. Eight years ago I got a tingling, numb sensation in the middle of my back, to the right of my spine. This spot comes and goes and can drive me crazy when it really gets going. I am 28 years old now and this feeling has gotten much worse in the past month and has spread. My right side of my body seems to have numb spots as well. Worse on some days than others. I feel it in my face, forehead, lips, check, and chin.

My second symptom was tightness in my chest. About 5 years ago I had the first tightening experience and felt like this was what it must be like to have a heart attack?! I had no clue until a week ago that there is something called the "MS Hug". The tightening is in my sternum and really gets bad when I am stressed. After years of dealing with this, I can now lean back and more or less "pop" my chest to relieve the pressure. Does this sound like the "MS Hug"?

My newest symptom that led me to go see a neurologist is an internal shaking feeling. I was lying in bed and thought either there was an earthquake or our house that we just moved in to was shaking due to the fact that it is 90 years old! I almost woke up my husband because that's how much I felt it. I put a glass of water on the edge of the bed and it wasn't shaking. I felt this shaking for about a week until I realized it wasn't the house, but it was me. I slept at my parent's house and felt the same sensation. It is now effecting me throughout the day too. :( Sometimes I still ask my husband if he is sure the house isn't shaking!? Even though I know it isn't. He thinks i'm going crazy!

I have had a few days where I feel incredibly light headed and just out of it. Eating or working out don't help it to go away. I am concerned about my memory, due to the fact that I taught kindergarten before I had my baby and can only remember 5 of my student's names. Could be baby brain, but I have tried drawing out the room and everything and still can't remember. It's very frustrating.

Also, are there kidney related problems with MS? My lower back, where my kidneys are located, hurts whenever I am dehydrated or drink any alcohol.

Am I going crazy or do these symptoms point to me possibly having MS? My have an MRI scheduled for next week of my spine and brain. I would honestly be shocked if nothing showed up, but who knows?


Thanks for taking the time to read this!
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Re: Symptoms are pointing to a possible diagnosis

Postby want2bike » Wed Jul 02, 2014 10:31 am

Your symptoms indicate a neurological problem but hard to say which autoimmune disease you might have. It could take a long time for them to figure it out. Dr. Bergman gives a solution to all autoimmune disease. Might give his program a try. Will not cost that much and you may get better.

http://www.youtube.com/watch?v=zGmyUppmt-g
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Re: Symptoms are pointing to a possible diagnosis

Postby lyndacarol » Wed Jul 02, 2014 11:56 am

clew85 wrote:This is my first post and would love any feedback! I just had a baby 4 months ago and I have heard that MS symptoms can really get going postpartum. This could be the case with me.

I'll start with my first symptom. Eight years ago I got a tingling, numb sensation in the middle of my back, to the right of my spine. This spot comes and goes and can drive me crazy when it really gets going. I am 28 years old now and this feeling has gotten much worse in the past month and has spread. My right side of my body seems to have numb spots as well. Worse on some days than others. I feel it in my face, forehead, lips, check, and chin.

My second symptom was tightness in my chest. About 5 years ago I had the first tightening experience and felt like this was what it must be like to have a heart attack?! I had no clue until a week ago that there is something called the "MS Hug". The tightening is in my sternum and really gets bad when I am stressed. After years of dealing with this, I can now lean back and more or less "pop" my chest to relieve the pressure. Does this sound like the "MS Hug"?

My newest symptom that led me to go see a neurologist is an internal shaking feeling. I was lying in bed and thought either there was an earthquake or our house that we just moved in to was shaking due to the fact that it is 90 years old! I almost woke up my husband because that's how much I felt it. I put a glass of water on the edge of the bed and it wasn't shaking. I felt this shaking for about a week until I realized it wasn't the house, but it was me. I slept at my parent's house and felt the same sensation. It is now effecting me throughout the day too. :( Sometimes I still ask my husband if he is sure the house isn't shaking!? Even though I know it isn't. He thinks i'm going crazy!

I have had a few days where I feel incredibly light headed and just out of it. Eating or working out don't help it to go away. I am concerned about my memory, due to the fact that I taught kindergarten before I had my baby and can only remember 5 of my student's names. Could be baby brain, but I have tried drawing out the room and everything and still can't remember. It's very frustrating.

Also, are there kidney related problems with MS? My lower back, where my kidneys are located, hurts whenever I am dehydrated or drink any alcohol.

Am I going crazy or do these symptoms point to me possibly having MS? My have an MRI scheduled for next week of my spine and brain. I would honestly be shocked if nothing showed up, but who knows?

Welcome to ThisIsMS, clew85.

Here is my feedback: Your symptoms are common to many conditions – MS is one, but there are many other more common conditions to rule out first.

If your GP or neurologist (or even your obstetrician) has not ordered testing to rule out a possible vitamin B12 deficiency, I suggest you discuss (with any of these doctors) getting a #1 serum B12 test, #2 serum folic acid test, #3 serum homocysteine test, and #4 a serum or urinary methylmalonic acid test (the urinary test is considered more accurate by some scientists). Do not take B12 supplements before testing as this will skew the test results. Ask for your own copy of the test results.

A B12 deficiency can develop at any time in a person's life, is linked to postpartum problems, tingling/numbness, chest pain, etc.

Signs and Symptoms of B12 Deficiency:

Tingling/Numbness
Sore Mouth or Tongue
Fatigue
Anxiety
Irritability
Depression
Weakness
Abnormal Gait
Mental Impairment
Visual Disturbances
Migraine
Orthostatic Intolerance
Chest Pain
Tachycardia
Difficulty Breathing
Edema
Elevated Homocysteine
Elevated MMA
Stomach and G.I. Problems
Blood Abnormalities
Neurological Lesions
Limb Movement Disorders
Psychosis

If you have a B12 deficiency that has progressed to actual anemia, any of the following symptoms (as well as a high MCV value on your CBC blood testing) may appear:
Cardinal Signs of Anemia Due to Vitamin B12 Deficiency:

Fatigue
Shortness of breath
Dizziness
Pale/yellowish skin
Swollen tongue that may appear dark red
Weight loss
Diarrhea
Numbness or tingling in your hands and legs
Muscle weakness
Irritability
Unsteady movements
Mental confusion or forgetfulness


By the way, alcoholic beverages deplete vitamin B12 - not good if you are even borderline B12 deficient. (The kidneys are actually located in the back above the waist, not in the lower back.)

If you are found to have a vitamin B 12 deficiency, it is easily and inexpensively treated with B12 supplementation.

You are not going crazy. A vitamin B12 deficiency has many neurological symptoms and can mimic MS. I encourage you to read the book, Could It Be B12? An Epidemic of Misdiagnoses by Sally Pacholok, RN, BSN, and Jeffrey Stuart, D.O. It is entirely possible that your MRI results will be perfectly normal; lesions in the brain and spinal cord often do not appear in the early stages of either MS or B12 deficiency.

All the best to you; please let us know how it goes.
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Re: Symptoms are pointing to a possible diagnosis

Postby clew85 » Thu Jul 03, 2014 11:03 am

Thanks for the responses. I do have blood tests that my Dr. ordered and one does test for B12 deficiency. I will be going on Monday and am interested to see how those come back. That would be great if it was just a B12 deficiency. I'll keep you updated. The symptom that really is driving me crazy is the inner shaking. It has spread to all over my body and keeps me from sleeping at night. One more strange symptom is that my right eye feels like it has something stuck in it. This is usually something tolerable, except it has felt that way for 3 months. I have only had one strange visual symptom in that eye, and that was everything appeared much more dim. This only lasted a few minutes. Eye drops don't help. I know now I am overthinking everything. Which in itself is not healthy! I'm just ready to feel like myself again. :)
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Re: Symptoms are pointing to a possible diagnosis

Postby clew85 » Fri Jul 11, 2014 2:51 pm

I do have a b12 deficiency and my dr. Is starting me on weekly shots. I had an MRI of my brain and spine today, so I will update if there is anything there. I can't wait to start the B12 shots to see if they help!
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Re: Symptoms are pointing to a possible diagnosis

Postby NHE » Fri Jul 11, 2014 5:18 pm

clew85 wrote:I do have a b12 deficiency and my dr. Is starting me on weekly shots. I had an MRI of my brain and spine today, so I will update if there is anything there. I can't wait to start the B12 shots to see if they help!


The methylcobalamin form is the best, but may only be available as an injection from compounding pharmacies. The hydroxocobalamin form is next best followed by cyanocobalamin. Methylcobalamin, however, is readily available as a sublingual supplement which is readily absorbed.
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Re: Symptoms are pointing to a possible diagnosis

Postby clew85 » Mon Jul 21, 2014 9:07 pm

The MRI results are in and I don't have any lesions in my spine, but I do have one in my brain, near my left ventricle. The nurse I spoke with said it could be the cause of some of my symptoms, but it doesn't look like MS. I feel like I'm left hanging. Are some lesions obviously MS and some not? What's the difference? I'm calling the doctor back for more details tomorrow.
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Re: Symptoms are pointing to a possible diagnosis

Postby NHE » Mon Jul 21, 2014 11:31 pm

clew85 wrote:The MRI results are in and I don't have any lesions in my spine, but I do have one in my brain, near my left ventricle. The nurse I spoke with said it could be the cause of some of my symptoms, but it doesn't look like MS. I feel like I'm left hanging. Are some lesions obviously MS and some not? What's the difference? I'm calling the doctor back for more details tomorrow.

Some lesions are more characteristic of MS than others.

Low B12 can be associated with periventricular lesions.
natural-approach-f27/topic24857-15.html#p226718

Have you started the B12 shots yet? If so, what type are you using?
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