Can I have your opinion?

This is the place to ask questions if you have symptoms that suggest MS, but aren't yet diagnosed.

Can I have your opinion?

Postby pande » Thu Mar 01, 2018 12:45 pm

Hi there,

I've had some chronic problems that doctors have been unable to address for many years, and I was wondering if someone could shed some light on my problems. I don't want to go to the doctor again for tests to just come up blank. The doctors usually look at me crazy when I explain these problems and my health insurance bill sky-rockets. I came across the list symptoms of MS when checking out my own, and realized that several of the problems that I've had could possibly be related.

The ongoing problems I've had are: bowel leakage (for 11 years), post nasal drip (for 9 years), eyes unable to stay focused... they constantly want to go into a blank stare (for 2 years). Last year I was diagnosed with testicular cancer, and about 2 months ago my head felt unbearably cold for about 3 weeks, and I was getting a slightly dizzy/cross eyed while this was happening. Lastly, I have a hard time communicating, or speaking to other people to the point that it's pretty noticeable to others, and kind of embarrassing. I haven't done any drugs, in case that crosses your mind.

Does this sound like it could be MS related to you? How seriously should I look into it as a possible cause? and if so, how should I get the doctor to run tests for it? Do I just march into the office and say that I've been Googling things, and want to be diagnosed for MS?

Thanks for any input or guidance anyone may be able to offer.
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Re: Can I have your opinion?

Postby jimmylegs » Thu Mar 01, 2018 1:31 pm

hi and welcome. sorry to hear what you've been through.

it's not in your best interests to try and self dx ms based on correlation with a few symptoms. there are so many conditions with overlapping symptoms in the mix. your symptoms sound troubling for sure but i'm not sure they're what you'd call 'common' ms issues.

it *is* a good idea to pursue health as energetically as you do diagnosis. especially while any of your issues are on the 'subclinical' side.

has anyone referred you to any health promotion professional(s), given that the disease management pros seem to have come up relatively empty so far? any review/analysis to date re diet and lifestyle, in comparison to general public health recommendations?

what can you describe about your general routine? i wonder if there are any meds potentially causing side effects, for example.

also do you have your own copies of all bloodwork done to date?
take control of your own health
pursue optimal self care at least as actively as a diagnosis
ask for referrals to preventive health care specialists eg dietitians
don't let suboptimal self care muddy any underlying diagnostic picture!
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Re: Can I have your opinion?

Postby Scott1 » Thu Mar 01, 2018 2:23 pm

Hi,

Jimmylegs is right. Sometimes doctors refer people to other doctors who think like them. Have you tried a different GP as a starting point.

Do you still see an oncologist for the cancer? Is the bowel problem more bladder than bowel. If its bowel, then have you told him?

You might need to shift your general medical advice to a new doctor.

The question I always ask myself is "is this person helping me?". I'm never looking for a nice bedside manner.

Regards,
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