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ccsvi in bulgaria

Posted: Thu Jan 13, 2011 2:44 pm
by johnjoe
hi, i'd like to hear from anyone that got ccsvi done in bulgaria about june and how are you getting on since? i got it done then, my walking hasnt really improved though i do feel better, not as tired etc. has anyone gone back the 2nd time, where veins still opne? anyone redone? stented??

John

Posted: Thu Jan 13, 2011 4:28 pm
by Nasti
CCSVI on June 3. First check up on Sept 7 also in bg. Everything was great. Up to november 1, relapse. Went back again in December. Veins wide open. More than ever before. Another relapse right now.
Not tired though.
You?

Posted: Fri Jan 14, 2011 7:48 pm
by jacksonsmommy
Had it done May 31st. Still doing much better than I was pre-procedure. I still have some MS limitations, but I still believe treatment gave me my life back.

Have not used my cane once since the treatment. Used to crawl up stairs and can now RUN up them! Energy levels dramatically improved. List goes on and on....

Ultrasound a few months ago (in Canada) shows stent still patent.

No relapses, except some mild neuro complications from influenza and a cold. Once the underlying infection left, so did the issues. The issues were way less than they were for underlying infections before treatment.

Posted: Mon Jan 17, 2011 8:11 am
by Cece
Here is the very long thread of Bulgaria, there might be follow-up updates in there:
http://www.thisisms.com/ftopict-9625-bulgaria.html