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CCSVI in Bulgaria
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protek
Newbie
Newbie


Joined: Jan 03, 2010
Posts: 3
Location: Bulgaria

PostPosted: Thu Jan 07, 2010 8:43 am    Post subject: CCSVI in Bulgaria Reply with quote

National Cardiology Hospital, Clinic of vascular surgery and angiology
Assoc. Prof. Lachezar Grozdinski, MD, PhD, specialist in angiology.
Sofia, Bulgaria, phone 00359 2 997 89 18, mobile 00359 888 758 058. E-mail - grozdinski@mail.bg
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NewHope
Family Member


Joined: Jan 06, 2010
Posts: 30
Location: USA

PostPosted: Thu Jan 07, 2010 2:20 pm    Post subject: Reply with quote

That's great news, protek! I already contacted the doctor and he is very nice! Also, I found out that he is the best angiology specialist in Bulgaria! Dr Simka is already booking into May 2011 so it's great we can also go to Bulgaria for testing and treatment!!!
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costumenastional
Family Elder


Joined: Feb 01, 2009
Posts: 589
Location: Greece

PostPosted: Fri Jan 08, 2010 6:05 am    Post subject: Reply with quote

Is there any information about him testing for CCSVI? And if so, is it via MRV, doppler or both?

Indeed, dr Simka seems to be very busy...
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NewHope
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Joined: Jan 06, 2010
Posts: 30
Location: USA

PostPosted: Fri Jan 08, 2010 8:39 am    Post subject: Reply with quote

The doctor told me he is very interested in CCSVI, has started this recently, and has had a few patients so far and there are people enrolled, I suppose mostly Bulgarians with MS at this point. He has been gaining experience in this. Since he is a very good angiology specialist as it is this will be a good option for CCSVI.
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costumenastional
Family Elder


Joined: Feb 01, 2009
Posts: 589
Location: Greece

PostPosted: Fri Jan 08, 2010 8:41 am    Post subject: Reply with quote

thank you very much. sofia is a 1 hour flight from Athens and i hope we hear good things from him soon!
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NewHope
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Joined: Jan 06, 2010
Posts: 30
Location: USA

PostPosted: Fri Jan 08, 2010 4:42 pm    Post subject: Reply with quote

Yeah, me too! Very Happy
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Badger
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Joined: Dec 15, 2009
Posts: 111
Location: Glasgow, Scotland

PostPosted: Thu Jan 14, 2010 11:22 am    Post subject: Dr.Grozdinski Reply with quote

I have been in touch with Dr.Grozdinski and he told me to send him an email, I did that on Monday and he has already replied asking me to send my name and address before he gets back to me with a date. Ye ha!!

I have also been in touch with Dr.Simka, Poland but despite being told I should have an appointment sometime in March, I still await his reply. Obviously Dr.Simka is extremeley busy but hopefully one will supply a date soon!!!!!! Very Happy Very Happy Very Happy
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ErikaSlovakia
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Joined: Jul 30, 2009
Posts: 858
Location: Slovakia, Europe

PostPosted: Thu Jan 14, 2010 11:30 am    Post subject: Re: Dr.Grozdinski Reply with quote

Badger wrote:
I have been in touch with Dr.Grozdinski and he told me to send him an email, I did that on Monday and he has already replied asking me to send my name and address before he gets back to me with a date. Ye ha!!

I have also been in touch with Dr.Simka, Poland but despite being told I should have an appointment sometime in March, I still await his reply. Obviously Dr.Simka is extremeley busy but hopefully one will supply a date soon!!!!!! Very Happy Very Happy Very Happy

Hi Badger!
Great!
Say hello to whole Glasgow from me , please. I get my LDN from there and it helps!
Good luck!
_________________
LUCKY GIRL, Aug. 7, 09 Doppler Ultras. made by Dr. Simka in Poland, left Jugularis valve problem, RRMS since 1996, EDSS 5,5, Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, IBT-for 3 months, never on DMDs
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colapesce
Family Elder


Joined: Dec 11, 2009
Posts: 133
Location: London, UK

PostPosted: Thu Jan 14, 2010 12:16 pm    Post subject: Reply with quote

Hey Badger,

I received the same email as you just today!

I'm so happy.

Fingers crossed for April!
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costumenastional
Family Elder


Joined: Feb 01, 2009
Posts: 589
Location: Greece

PostPosted: Fri Jan 15, 2010 1:40 am    Post subject: Reply with quote

I am also waiting for a date from dr Grozdinski and Simka. Let's hope they will know what to look for in Bulgaria. I m no doctor but from what he wrote to me it seems that he knows EXACTLY how to perform the tests required.
It will be sometime after April. We ll see...
No MRV though Sad CT venography instead. I guess this will have to do the trick.

Protek, thank you VERY much for sharing!!!!!!!!!!!!!!!!!!!!!!!
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NewHope
Family Member


Joined: Jan 06, 2010
Posts: 30
Location: USA

PostPosted: Tue Jan 26, 2010 3:38 pm    Post subject: Reply with quote

Hello,

I just saw a newspaper article posted in a Bulgarian MS forum about CCSVI. In short, Dr Grozdinski has formed a team with other doctors from "Tokuda" Hospital which is supposed to be one of the best hospital in Bulgaria, also famous as the Japanese hospital. The article says that the have tested 30 patients with MS and have performed one stenography with very very encouraging results a few days ago. But it doesn't say if all 30 people had CCSVI. Anyways, here is the article, it's in Bulgarian but you can translate it with Google: http://www.trud.bg/Article.asp?ArticleId=355704
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costumenastional
Family Elder


Joined: Feb 01, 2009
Posts: 589
Location: Greece

PostPosted: Wed Jan 27, 2010 7:23 am    Post subject: Reply with quote

NewHope wrote:
Hello,

But it doesn't say if all 30 people had CCSVI.


this sucks.
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goga
Newbie
Newbie


Joined: Jan 27, 2010
Posts: 1

PostPosted: Wed Jan 27, 2010 11:02 am    Post subject: Reply with quote

Who passed CCSVI treatment in Bulgaria; when was it; was it succesfull; how you were before treatment, and how are you now; what do you think about Grozdinski's treatment????
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costumenastional
Family Elder


Joined: Feb 01, 2009
Posts: 589
Location: Greece

PostPosted: Thu Jan 28, 2010 4:39 am    Post subject: Reply with quote

From a Bulgarian friend of mine taken from a Bulgarian MS forum:

Dr Grozdinski and 5 more doctors from a well known Cardiological Hospital tested the Dr. Zamboni method on 30 people and one of the doctors performed the first successful placement of a stent , but there is no more information about those 30 people.

Hmm, soon we ll know about the remaining 29 i guess. The fact that they stented a patient surely says something anyway.
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AnnaP
Family Elder


Joined: Dec 30, 2009
Posts: 101
Location: Montreal, Canada

PostPosted: Sat Feb 20, 2010 4:53 pm    Post subject: reply from Dr. Grozdinski Reply with quote

Hi everyone,

I got an email from Dr. Gozdiniski (Bulgaria) I'm on the list for June 2010, you can imagine my happiness Very Happy Very Happy Very Happy. He also wrote; more details to follow in March.

Any opinions, to this??? Please share.

Thanks,
Anna
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