CCSVI
Posted: Sun Jan 03, 2010 1:29 pm
CCSVI TRACKING 01/03/2010
MS HISTORYName: Phyllis (Bobbi); Female; 56 years of age
Diagnosis: 1992 @ St.Joesph’s, London, Ontario; MRI of Brain & Cervical Spine "..... multiple areas, predominantly at C2-3 level posteriorly on the left, C3-4 level posteriorly on the right as well as C4-5 and C5-6 levels and the T7-T1 levels”; No treatment needed
1999 Reassessed @ Hamilton Health Sciences Centre (MS Clinic) with Dr. P.;
Diagnosis SPMS; EDSS 4.0.; Treatment: REBIF 44 ug;
2002 New MRI of Brain; “larger and many more lesions”
From 2003 to 2009 EDSS 5.0 to 6.0
2009 Dr. STOPS REBIF due to showing little benefit at present.
MS Treatments: REBIF; physiotherapy; yoga; other drugs for depression, incontinence and sleeping; supplements
MS symptoms: weakness in right hand with tingling, progressing to difficult writing, buttoning clothing; Leg spasms, fatigue and lack of stamina, sensory deficit in toes, reduce sensation below knees in both legs and feet, leg spasticity, toes turn purple, hot & cold, left drop foot when tired; Disturbed sleep; up 2-3 times to void, urgent bladder and bowel, incontinence issues; Imbalance when standing or walking, use of cane, walker, wheelchair;
EDSS before CCSVI intervention: 6.0 (physician assessed)
FSS before CCSVI intervention: 6.0
MSIS before CCSVI intervention: 107
Not using inclined bed therapy.
STENOSIS TESTING HISTORY
Date/Location of testing: Jan 5 2010, Buffalo, New York
Type of testing: 2D, Doppler ultrasound
Diagnosis: Inconclusive evidence regarding jugular thrombosis or stenosis.
Date/Location of testing: Jan 19 2010, Niagara Vascular Lab, Canada
Type of Procedure: Ultrasound: Bilateral non-invasive assessment veins. B-mode and duplex imaging were employed. Compression maneuvers were performed.
Diagnosis: RIGHT SIDE: The max transverse diameter of the internal jugular vein is 1.4 cm, proximally, 1.8 cm in mid portion and 1.2 cm distally. Non-occlusive thrombus (unobstructed).
LEFT SIDE: The max transverse diameter of the proximal internal jugular vein is 1.4 cm, in the mid portion .8 cm and in the distal part .8 cm. Narrowing of the left jugular with possible "calcuim" deposits.
My Summary: Dr would not comment on connection to CCSVI ... but to me it looks like my left jugular vein has narrowing and some blockage issues.
NEXT STEP: Wait and see what happens with study results. Possible MRV in US.
MS HISTORYName: Phyllis (Bobbi); Female; 56 years of age
Diagnosis: 1992 @ St.Joesph’s, London, Ontario; MRI of Brain & Cervical Spine "..... multiple areas, predominantly at C2-3 level posteriorly on the left, C3-4 level posteriorly on the right as well as C4-5 and C5-6 levels and the T7-T1 levels”; No treatment needed
1999 Reassessed @ Hamilton Health Sciences Centre (MS Clinic) with Dr. P.;
Diagnosis SPMS; EDSS 4.0.; Treatment: REBIF 44 ug;
2002 New MRI of Brain; “larger and many more lesions”
From 2003 to 2009 EDSS 5.0 to 6.0
2009 Dr. STOPS REBIF due to showing little benefit at present.
MS Treatments: REBIF; physiotherapy; yoga; other drugs for depression, incontinence and sleeping; supplements
MS symptoms: weakness in right hand with tingling, progressing to difficult writing, buttoning clothing; Leg spasms, fatigue and lack of stamina, sensory deficit in toes, reduce sensation below knees in both legs and feet, leg spasticity, toes turn purple, hot & cold, left drop foot when tired; Disturbed sleep; up 2-3 times to void, urgent bladder and bowel, incontinence issues; Imbalance when standing or walking, use of cane, walker, wheelchair;
EDSS before CCSVI intervention: 6.0 (physician assessed)
FSS before CCSVI intervention: 6.0
MSIS before CCSVI intervention: 107
Not using inclined bed therapy.
STENOSIS TESTING HISTORY
Date/Location of testing: Jan 5 2010, Buffalo, New York
Type of testing: 2D, Doppler ultrasound
Diagnosis: Inconclusive evidence regarding jugular thrombosis or stenosis.
Date/Location of testing: Jan 19 2010, Niagara Vascular Lab, Canada
Type of Procedure: Ultrasound: Bilateral non-invasive assessment veins. B-mode and duplex imaging were employed. Compression maneuvers were performed.
Diagnosis: RIGHT SIDE: The max transverse diameter of the internal jugular vein is 1.4 cm, proximally, 1.8 cm in mid portion and 1.2 cm distally. Non-occlusive thrombus (unobstructed).
LEFT SIDE: The max transverse diameter of the proximal internal jugular vein is 1.4 cm, in the mid portion .8 cm and in the distal part .8 cm. Narrowing of the left jugular with possible "calcuim" deposits.
My Summary: Dr would not comment on connection to CCSVI ... but to me it looks like my left jugular vein has narrowing and some blockage issues.
NEXT STEP: Wait and see what happens with study results. Possible MRV in US.