SammyJo goes to Stanford

SammyJo · Family Elder Joined: Mar 11, 2004 Posts: 170

10/29/09 My husband said Dr. Dake came out to the waiting room after my 2.5 hour procedure and gave an enthusiastic run down, on what I gathered from the corner of my eye was a flawless installation of 3 stents & 1 angioplasty. Both jugulars a mess, but azygos OK. Flew back to Seattle Sun. and I'm recovering well, but muscles still weak. Neck pain initially severe, a few headaches, but now manageable, just using Tylenol, percocet made me sick.

Will post tracking log once I get doctors notes, so I can be accurate, and I've got great pictures. I will add tips for future stenters to this thread. Thankyou to this amazing CCSVI community, having so much info up front helped me visualize a perfect outcome at Stanford, a happy ending to 15 years of suffering.

cheerleader · Posted: Mon Nov 02, 2009 9:14 pm Post subject:

SammyJo-
Jeff and I wish you nothing but healing days ahead. You have worked so hard for so many with MS, and our prayers for you now are that you will reap the benefits of this procedure. Jeff couldn't handle percocet either, and the prescription strength tylenol knocked the pain back. Remember the 2 steps ahead, 1 back rule. Give your body time to heal and your brain time to readjust to new fluid levels. Drink plenty of liquids, get plenty of rest. Please keep us posted as you are able-
all best,
cheer
_________________
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
dual stents placed 5/09
CCSVI in MS

CRHInv · Posted: Mon Nov 02, 2009 10:37 pm Post subject:

Yeah for "flawless installation"!! Rest up and take care of yourself. I can't wait to hear more details.
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dx 4/09 * Stanford appointment 11/09/09 * One stent left, low jugular 11/10/09!

Sharon · Posted: Mon Nov 02, 2009 10:45 pm Post subject:

SammyJo-

So glad you are back home and resting. Three stents and one angioplasty--you once again are a pioneer in the story of MS. Take care of yourself in the next few days --- this is not necessarily an easy recovery. Take the time you need to heal.

I ditto Cheer's remarks - you have worked so hard for those who have suffered with MS. You have an amazing network of LDN followers (doctors and patients) who are going to be following your recovery --- you will spread the word about CCSVI ---- maybe next year at the LDN conference?

Take Care,
Sharon

LR1234 · Posted: Tue Nov 03, 2009 2:44 am Post subject:

Thats great news Sammy:) I also pray for you to reap the benefits of the procedure, fingers crossed.

Needled · Posted: Tue Nov 03, 2009 7:20 am Post subject:

SammyJo, All my best for a smooth recovery. Congrats!!

Shannon · Family Member Joined: Sep 29, 2009 Posts: 82

Very excited for you! Seems like a miracle. Tears in my eyes about "15 yrs. of suffering." That's how long it's been for me, too. I am still waiting for the insurance company to approve. Thank you for being here. Smile

Rest well!

Loobie · Posted: Tue Nov 03, 2009 9:26 am Post subject:

Awesome SJ! Glad everything went well.
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http://myhopefuljourneyintoactualmsrecovery.blogspot.com

radeck · Family Elder Joined: Feb 17, 2009 Posts: 398

Again, congrats that everything went so smoothly. I'm thinking of you several times a day hoping that you won't have post procedure complications and continue to do great.

Arcee · Posted: Tue Nov 03, 2009 11:40 am Post subject:

And another voice chiming in to say congratulations and wish you an easy recovery. Looking forward to hearing more about your experience, and so glad you are part of the CCSVI crew.
_________________
diagnosed RR in spring '04
1 stent placed in left jugular vein 7/15/09
on and off Copaxone
allergric to interferons and Tysabri

magoo · Posted: Tue Nov 03, 2009 12:29 pm Post subject:

Congrats and take it easy! I hope your results will be amazing!!
_________________
Rhonda~~
Diag. with severe stenosis in the jugular veins.(Stanford-Dr. Dake)10/19/09 Stents placed,pressure gradients obliterated,collateral pattern no longer filling,both veins normal. Feeling healthy & nearly all MS symptoms gone.

bestadmom · Family Elder Joined: May 19, 2009 Posts: 517 Location: CT

Congrats, you sound great - upbeat and strong.

ozarkcanoer · Posted: Tue Nov 03, 2009 12:33 pm Post subject:

SammyJo... I am very excited for you and hope with all my heart that your recovery will be fast and your MS symptom be eased.

mrhodes40 · Posted: Tue Nov 03, 2009 6:44 pm Post subject:

Yay SammyJo! Newest stent-o-teer! I am so glad you had the chance to see Dr Dake and get the evaluation. The neck pain is terrible in the beginning for sure you'll feel better soon! I wish you so very well, congratulatins!
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Not offering medical advice, I am just a patient too!
Regimen thread

skydog · Posted: Tue Nov 03, 2009 10:33 pm Post subject:

Hello Marie, Looks like I will be heading down to Stanford next week for testing/treatment on the 12/13th. For some reason I feel a little apprehensive this time around. I guess from the poor out come of the first round. You know still not knowing why the stenosis formed where there were no apparent problems before has me concerned. It is my hope that Dr. Dake has some answers for me. Personally the cpn/bugs and not being able to get the INR to therapeutic level are the jest of my worries. Not sure if there being even considered as possible interference of the healing after our procedures. Still clinging on to my good health but there sure has been a cascade of new MS symptoms and the worsening of the old ones to contend with. Mainly just wanted to say Hello! Hope your enjoying this great fall weather. Cheers, Mark Meant for this to go as a PM to marie but since I am here, Wishing you the best recovery possible Samyjo Peace and health to you, Mark